Sarah_51
15 years agoMember
Arm paranoia
I have been absolutely paranoid about my right arm since surgery, thinking I would get Lymphoedema. Today I saw my physio at the hopsital for my post radiation arm measurements and I was so happy tha...
Hi Julie, After my first surgery and radiation back in 2006/2007 I was unlucky to have exactly what you describe. I was always looking in the mirror comparing my arms and also bothering my husband to check them. I religiously have my lymphatic drainage massages and still the pain. After a couple of years of still having the pain (others I knew did not have this pain) my surgeon said "Well it looks like after such a long time you are stuck with it" So I have "learnt" to live with it. There is no rhymn or reason for the pain - if I do too much I get it. If I don't use the arm enough I get it. Then with this new diagnosis last December and subsequent surgery, radiation and chemo I am now in agony - and of course the Arimidex just adds to it. I am taking so many vitamins (can't take strong pain relief) having all the natural therapies and there is no let up. I have also found out that my other arm has a tendon tear in the shoulder!!!! (off to see the Orthopedic surgeon in mid November) I am so tired all the time due to not being able to get a good night's sleep - too uncomfortable with pain. Yes I do know what you are going through - apparently it is the "dead" nerve endings. People say how good I look (and that's terrific) but the pain is unbearable at times. My suggestion to you - keep looking for answers and enjoy the times that your arm is "not too bad". I actually said the other day that I would love to have a day with no pain - can't remember what that is like. But the good thing is I AM STILL ALIVE to tell the story!!!!! XLeonie