Arimidex

Poor Bella! I know what you are going through. Some days it is OK with just twinges, but other days every step is painful and my whole legs screams at me. I don't like taking painkillers but when I am at work I have to. Is it every joint with you? Mine is in the knees mainly. I want to stop taking the Arimidex but fear the cancer coming back.

Take care,

Lynne

Hi suzy, would be v. interested in seeing how you cope with Femara after trying arimidex - my joint pain is also excruciating, am taking up to 8 painkillers per day, and who knows what that's doing to my liver/kidneys, but cant cope otherwise.  Am also interested in anyone who may have had some success with alternatives, e.g. meditation or accupuncture etc.  I am a bit wary of taking over the counter alternatives, but what about glucosamine?  I tend to think that may not make any difference, because, technically there isn't wear and tear on the joints which is causing the pain.  Good luck suzy41.

Had to come off arimidex-   made my arthritis  excruciating!!   AM TRYING FEMARA BUT the puffiness of feet and ankles is terrible.    Had a really bad week this week.   Now the heat and humidity is rising and I am feeling so much more than usual!     Will let you  know how the femarta goes-  there are several alternatives and I am convinced that we just have top keep trying till we get the least side effects. 

Hi everyone, first of all, good luck with your treatment and wherever you are on your "journey".  I have  been on Arimidex for just over 6 months, and have had extreme joint pain on occasions - I have a high pain threshold, but this has reduced me to tears and has made me unable to cope with day to day  stuff - not ALL the time, but when it hits, it REALLY hits.  I suspect this is because I have had Ross River fever previously, with a history of joint pain.  Has anyone had any luck with alternative therapies?  I am desperate

Hi everyone, first of all, good luck with your treatment and wherever you are on your "journey".  I have  been on Arimidex for just over 6 months, and have had extreme joint pain on occasions - I have a high pain threshold, but this has reduced me to tears and has made me unable to cope with day to day  stuff - not ALL the time, but when it hits, it REALLY hits.  I suspect this is because I have had Ross River fever previously, with a history of joint pain.  Has anyone had any luck with alternative therapies?  I am desperate

It does get better Suzy. My joints (especially knees) can get very painful, more so when I am at work, but my doctor told me to take Nurofen on the bad days. The headaches and nausea are nowhere near as bad as when I first started. I was going to quit but my oncologist convinced me to " stick with the programme" and I am glad now I did. I see her on Monday :)

Good luck.

XXX

I have been on Arimidex for three weeks and have found that my joints have become very painful- my hip is the worst  but my fingers are stiff and my fine motor control is getting really bad-  could not even crochet yesterday. I have had arthritis since I was 9 and have had it under control for the most part,  but an now feeling terrible.  Have noticed some swelling of feet also.   I hope this improves.  Still having problems with the after effects of taxotere so am not sure which side effects are from which drug.  I do not like being on this drug cocktail they have got me on.

thanks for your reply, Kaz. How long have you been on the pills?

thanks for your reply, Kaz. How long have you been on the pills?

thank you for your quick reply. I see the oncologist on the 16th November for my first check since starting the drug so I will talk to her then. I thought the symptoms would be pretty much the same for everyone but it seems they are random. To start with I thought it was going to be a breeze, lol. We have a takeaway so having hot flushes while standing over a hot vat is a whole new experience!

Lynne