Forum Discussion
melclarity
8 years agoMember
@LMK74 Ohhh so incredibly normal, and it really does get you down! I've worked incredibly hard the past year or so. An Exercise Physiologist has been so pivotal for me and its the stretching exercises more than anything, I dont do anything hard and fast, but I feel good all over. Chemo shrinks the sheath over the muscles, so suffer alot of cramping in my back of all places. I only see her every few weeks or so and am finishing up with her next week. I had an app that would keep me monitored for how I was going. So moving forward I know what to do to manage myself. I cant walk longer than 30 mins due to neuropathy in my feet, so have accepted that, I cannot run lol. Panadol osteo helps ALOT and I recommend on a bad day. I now after 2.5 years am in a great place, Id be lucky to take the panadol osteo once or twice a week now. Thats progress!!! It's been an incredibly long hard journey back from this and I don't think people are told the truth of recovery at all. Some women can work through treatment really well and have minimal side effects, I was a very healthy person and I suffered incredibly. Chemo honestly nearly physically killed me lol, I was so ill and had to give up work. It financially ruined me these past years. I cannot tell you how important magnesium is, I take this in water daily together with Vit D/C.
At my last visit, last week I had the chance to say I dont want to take Aromasin anymore due to side effects...BUT you know what?? Im achey yes, my feet suffer alot, but Ive learnt to work around it all and understand my new limitations. I never thought I could get here where I am, I can now ride 5km on my exercise bike and building, its progress. I eat really well and still indulge in a wine when I feel like it and chocolate! I feel good! and I do all of this because I feel good not because "they say to" in terms of risk of recurrence...I did all the right things and still had a recurrence lol...theyre clutching at straws because they dont know. None of it contributes to Breast Cancer, otherwise there would not be the world over such diversity in all people male and females who get it. My Rehab Program I did post chemo had Specialists all confirming this, unbelievable hmmm?
So be kind to yourself, believe that it will get better and believe me it will!!! I no longer need an afternoon nap unless I've had a stressful time with work/life balance. Go slowly and this is a time of nurturing YOU back to a reasonable place of comfort for you to enjoy life again.
Biggest of hugs, youve done a fantastic job! You will become more active again in time, the meds won't make you put on weight, chemo for me bore all the symptoms and side effects...more than meds. I also like that together with Aromasin, Prolia injections I have protect me of recurrence..or so they say haha!!! I think it goes deeper than that....its about us as people...so love yourself back to life!
xx Melinda
At my last visit, last week I had the chance to say I dont want to take Aromasin anymore due to side effects...BUT you know what?? Im achey yes, my feet suffer alot, but Ive learnt to work around it all and understand my new limitations. I never thought I could get here where I am, I can now ride 5km on my exercise bike and building, its progress. I eat really well and still indulge in a wine when I feel like it and chocolate! I feel good! and I do all of this because I feel good not because "they say to" in terms of risk of recurrence...I did all the right things and still had a recurrence lol...theyre clutching at straws because they dont know. None of it contributes to Breast Cancer, otherwise there would not be the world over such diversity in all people male and females who get it. My Rehab Program I did post chemo had Specialists all confirming this, unbelievable hmmm?
So be kind to yourself, believe that it will get better and believe me it will!!! I no longer need an afternoon nap unless I've had a stressful time with work/life balance. Go slowly and this is a time of nurturing YOU back to a reasonable place of comfort for you to enjoy life again.
Biggest of hugs, youve done a fantastic job! You will become more active again in time, the meds won't make you put on weight, chemo for me bore all the symptoms and side effects...more than meds. I also like that together with Aromasin, Prolia injections I have protect me of recurrence..or so they say haha!!! I think it goes deeper than that....its about us as people...so love yourself back to life!
xx Melinda