Forum Discussion

betty55's avatar
betty55
Member
13 years ago

Anybody Out There

Hi my name is Betty, I am 57 yrs old and just been diagnosed with malignant phyllodes tumour. It is a rare type of cancer and accounts 1% of breast cancers.  I am very confused about what after treatment to get after removal via a lumpectomy. My sugeon tells me chemo is not an option and there is limited reseach about the effectiveness of radiation therapy.  Any bloggers had there had experience with this type of tumour, I would be interested to hear from you. My life was pretty good until Mr Phyllodes decided to drop by. Have a good day.

Cheers Betty

2 Replies

  • Colleen63's avatar
    Colleen63
    Member
    13 years ago

    Hello Betty

    Thanks Daina for message.

    Sorry to read your news that you have a malignant Phyllodes Tumour and no doubt you feel a bit anxious on hearing that it does not respond to treatment.

    I hope that you seek a second opinion on what should be done for you.

    On this Forum we chat about our diagnosis and progress and I am sure it would help you to join in and accept some support from us all.

    You are welcome to contact me privately if you prefer and meantime I send healing vibes to you and a big hug to help you through this crisis in your life.

    Thinking of You

    Colleen

     

  • Anonymous's avatar
    Anonymous
    13 years ago

    Hi Betty,

    I can say you have come to the right place. I know there are quite a few other members who have been diagnosed with Phyllodes.

    I'm sure some of these members who will share their experiences with you.

    ~ Daina