Forum Discussion
melclarity
8 years agoMember
@spillsy I didnt have AC I had FEC which was the red devil, once every 3 weeks for 4 week was horrendous, 2nd, 3rd and 4th transfusion I was in hospital for 3 days each and then home to recover. I was incredibly ill. I then had 8 Taxol after that and it is different, being a weekly transfusion. I'd find that night I'd get restless legs so odd and unnerving. Felt the worse on about day 2 or 3 I think then picked up about day 6-7 to get hit again. By week 5 I was in constant pain there were no days of let up. It was different in many ways but cumulative so I had no hope after FEC and was off work for 3 months, I ended up with neuropathy in my toes which after 2.5yrs still is there. It's doable, but I was unable to work and all my exercise went out the window through treatment, I lost all muscle mass and had to learn to walk again. Once finished treatment it was a long recovery, so did an Enhance program at the Epworth and then worked with an Exercise Physiologist for over a year, was great! What I learnt was nothing else mattered in the end but me...I never put anything or anyone above me anymore after traveling this road twice. Hard lesson, but work is work...I am finally this year back full time after 2yrs. It is very hard but Im doing it and so proud of me. Put you first all the way, that is the key no matter what anyone tells you, that you should be doing. xx Melinda