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lgray3911's avatar
lgray3911
Member
9 years ago

Any helpful advice and tips welcome!

Hi so I have my first round of chemo tomorrow morn at 8am. 1st chemo combination is Doxorubicin and cyclophosphamide apparently it will take 2 hours and I have 4 sessions of these over 12 weeks? Can you tell me anything about them just out of interest? Or any tips on what's good to do today( the day before treatment) or tomorrow (day of). Would love to hear tricks of the trade that people have tried that worked to eleviate negative reactions/symptoms. Would also like to hear how people reacted as in Day of treatment felt ok Day 3 after treatment etc...Am pretty nervous but excited to get started all at the same time!! Xx

8 Replies

  • Lilian is so so right, HYDRATE is so important!!! for many reasons, BUT.....be aware it does NOT flush the chemo out or the side effects. The Oncology ward where I was made it perfectly clear to the patients and it did surprise me uuugh!!! Chemo doesnt work that way. x M
  • I'm my 3rd treatment in, different to yours though.
    i found the first round tough as you just don't know how you will react as everyone is different. I had jotted down lots of advice I had read in the threads here and so took note when I had a side effect what others had suggested.
    I kept a diary of each day after chemo, noting any side effects. This was important because as the days pass and you hit a new side effect you forget the others :) I took this with me to the next onc appointment and discussed them all with her along with any remedies that had been suggested and we came up with a plan to manage it for next round. Communication with onc is so important, they know what to do :)
    Things I have found most helpful:
    hydrate! And keep drinking. I always have a bottle of water with me. Get hydrated before treatment, drink whilst getting treatment, drink to flush it all out after.
    write things down - I get quite 'foggy' so have a white board with all the meds/supplements I take and have space to tick off each day or write times I take them so I know what I'm up to and taking the right things.
    keep up the panadol. I suffered through my first round and then my chemo nurse gave me a good tip. Half an hour before I have the shot for white blood cells (can't remember it's name), take panadol then keep taking it regularly. This cycle I've done that and so far it's been a relatively good cycle.
    i also started going to a sports physiologist, doing 3 gym sessions a week and found it really helped with fatigue and overall mental wellbeing. 
    I have mine every 3 weeks. I find week 1 I go through side effects, week 2 I'm fatigued from my body doing all that work fighting, week 3 I'm back to normal so I meal prep and try to get ready so I can rest as much as possible.
    Hope everything goes as smoothly as possible for you xo
  • My rotten day was always the night of the 5th day after chemo, for some unknown reason. Don't plan any outings or parties for then. The premeds stop you puking and usually stop you having a reaction during chemo but if you do have a reaction they stop the infusion and add in more premeds to fool your body into accepting the chemo. The think I really hated was the loss of taste for a few days and I drank gallons of water like a camel at an oasis.
  • Thanks girls!!! Only time will tell. I hate not being in control and hate the unknown but that's my new life for the next 6mths so I just need to get this shit done! Thanks again for the support xxx
  • I had A/C then Taxol/Herceptin. I had no issue with the actual A/C treatments -  I usually read or did crosswords and emails. Occasionally you are sitting next to someone who is happy to chat a bit. I never started a conversation as I think people want to deal with it in their own way. If they have family or friends with them, they certainly don't want to be interrupted. But I was happy to respond if someone else on their own wanted to converse.

    With Taxol I got phenergan, which just made me dopey/sleepy to every one else's amusement. I asked my oncologist to drop the anti nausea medication (as I never had nausea and was getting constipated) so he did and I was fine.

    I continued to feel fine when I went home - after A/C I didn't have much appetite for 2 or 3 days (no nausea, just not very hungry) and then I was back to normal, With Taxol I lost a lot of my taste buds - excellent if you want to lose weight!

    Good luck!

  • Hi Igray391 .For me I liked to distract myself . I had my computer or ipad and would play solitaire as soon as nurses started. Or I would play a computer game I had downloaded. Sometimes I would read. After chemo I used to do  a short walk. I usually felt fine.However I got really tired and would sleep for several hours. when I got home.
    Down the track I did get side effects. You are unique. If things do not go to plan  the oncologist will help you through. My dosages of chemo were reduced in my last few cycles.Hopefully you will be fine

  • @lgray3911 all the best for tomorrow, it can be a little daunting absolutely!Biggest thing you should be doing today is hydrate!!!! very important, mainly because it helps make it easier to find your vein. The Staff are wonderful and will step through each thing as its happening. I had FEC 3 weekly 4 times, I felt weird after first infusion as I left I felt like Id had too much to drink, everything was hazy and I felt quite unwell. Id had all the pre meds everything but it was odd. I went home and laid down but felt worse after a few hours. The next few days werent great but I came good about day 8, so they determined that I needed to be in hospital after each infusion. Im drug sensitive and unfortunately didnt cope with Chemo. I did have 8 Taxol weekly after that which was completely different but on top of FEC it accumulated and I wasnt great. Everyone is different, I went in very determined, but I had to let go of all expectation and control, it dictated how it was going to be. You'll do fine! xx Melinda 
  • Hi @Igray3911, I had the same treatment followed by Taxol x 12. They give you steroids & medication to take for the next days to manage any nausea & also they recommend a sedative for 5 days after chemo for sleep because sometimes the steroids will keep you awake & also Nexium for heartburn if needed. You should get a take home pack. I had my chemo on a Friday & felt great until Monday night when I would start to experience some side affects such as heartburn & metallic taste and a sense of feeling of blur which lasted for a few days but I only had 2 days off work in 6 months. Everybody reacts differently so your chemotherapy nurse will advise you plus you will receive information sheets. Try & eat healthily & exercise does help alleviate symptoms even if you feel terrible. Some people sail through chemo & you may be one of them. I did chemo with 6 other ladies & they all had a relatively easy time except for the odd day or two.