traxx65
14 years agoMember
ANOTHER HICCUP
Hi ladies, went back to the Oncologist today and well it wasn't what I had hoped for. One of the mediastinal nodes has grown to two inches while I have been on Aromasin. Also my CT scan shows a pl...
I have been on xeloda since the end of June. Recently had a couple of weeks break from both xeloda and tykerb to give the body a rest as i had picked up a gastro bug going around and was pretty 'spent'. I had forgotten to mention when i 1st went on the xeloda diarrhoea was a real issue my oncologist tweaked the dose a little and we seem to have it at a managable level. Tykerb doesn't help either as i can still experience it a little when on the tykerb only. My hair is slowly growing back after the radiotherapy and we shaved it off when the scalp started getting sore-so having xeloda doesn't mean u will definately lose ur hair again.
You may be able to flex ur work a little, maybe reduce ur hours till u know exactly how u feel, plus there is a bit of a cumulative effect with the fatigue, so i normally feel ok for the 1st few days of the fortnight, then begin to tire out easily, nanna naps come into play and then u get a week off..all about management-but when isn't it!
Sometimes i just get so 'over' having this crap constantly with no treatment end date to look forward to. It is so great to come here and support each other, get feedback and connect with others that REALLY understand what can go thru ur head and what ur body is feeling too
If i think of anything else i will let u know :)
Sam xxx