Angela

Hi Judi Ann,

I too hope the acupuncture relief continues. I also have joint pain in knees & ankles but hands are used so often so cause me the most stress. I will have to make a decision in Nov as to go off Arimidex or not. Everything I read tells me Arimidex is best but the joint pain stops me doing things I usually do so I guess there is a life style choice to consider as well. Still not sure what to do.

I will be interested to hear what your oncologoist has to say next week. Good luck.

Hi Genetten.  Really good to hear two sessions of acupuncture are giving you night time relief with your hands.  Hope this keeps up for you.  I didn't seem to have problems with my hands while on Arimidex, but it took me all my time to get out of bed in the mornings - painful shoulders, legs, etc.  Since being off Arimidex this is not nearly as severe, but feel sure I'm going to have to go back on something once I see the Oncologist on Tuesday for a 2nd opinion.

Best wishes for continued relief.

Hi ladies,

i have now had two acupuncture sessions and so far so good. I am getting night time relief with my hands. They are not falling asleep and being dead weights like they were. Mostly I am sleeping through, apart from an occasional hot flush. Now when my hands fall asleep I can wake them up relatively quickly. I can only recommend acupuncture if you have this problem. The neuropathy alos seems to have lessoned-not gone away but a bit better, particularly in my left hand.

How are you all coping?

Hi ladies,

i have now had two acupuncture sessions and so far so good. I am getting night time relief with my hands. They are not falling asleep and being dead weights like they were. Mostly I am sleeping through, apart from an occasional hot flush. Now when my hands fall asleep I can wake them up relatively quickly. I can only recommend acupuncture if you have this problem. The neuropathy alos seems to have lessoned-not gone away but a bit better, particularly in my left hand.

How are you all coping?

Hi Chris

Just goes to show - different medications suit different people.  I know there is Arimidex, Femara and Anastrasol (I think), but my GP said I might be able to take Tamoxifen!  Will see what the oncologist says when I see him on 11th Oct.

Thanks. Judi x

I am on the Gold Coast and fortunately we have our monthly meetings too.

I am in North Brisbane. We meet twice a month...once in the morning and then the next in the afternoon for those that work. I go to both so I can catch up with everyone!

Regards,

Lynne

Hi Lynne

You have written some lovely words.  It is indeed comforting to know we're not alone in this, what we feel, others are feeling too.  Well done.

I hope you enjoy your meeting tomorrow morning.  I am part of a group called Cancer Support Sisters and we meet once a month for a meeting, then lunch together. Where are you?

Regards - Judi Ann

Exactly why our group get togethers are so important.......to me anyway!  We have a connection that no one else has and it is so easy to  talk to every one there. If I have a twinge or an ache I can mention it and one of the others will have had exactly the same twinge!  So reassuring and comforting to know that you aren't imagining things. Just because I haven't lost my hair and my scar isn't showing doesn't mean that everything is back to normal and the others all understand this.

And the best thing is....we are meeting tomorrow morning :o)

Regards,

Lynne