At least today I got the Paclitaxel in (hopefully will start working unlike the AC), and hopefully next week the Herceptin will have been approved and can be a part of the treatment plan, 7 weeks after my aggressive HER2+ cancer was identified. Finally!
I had the cold cap and some buckets of ice for my hands and feet. Many of the nurses seemed amused by my efforts to counter the neuropathy and nail and skin problems but once I got used to it it was okay. Played scrabble and had to keep taking my hands out of the ice bucket to play but then they would go back in and I alternated.
I believe they have to petition the drug company to get Perjeta for me on compassionate grounds as its not on the PBS. If I can't get it that way I will consider selling my jewels or extending the mortgage or taking my super or borrowing from my dad (or a combination) to try to get it into my treatment plan. Even for a few percentage points better chance that I will survive and not have it recur or metastasise I think 40K or 60K or whatever it costs would be worth it. My kids need a mother. My husband was saying even if we have to sell the house to pay for my treatment we should. I really don't want to cos building it was such a labour of love but its true cancer makes you look at life and wealth differently. You can't take it with you!
I was told my white blood cell count today was extremely high (10) when it was 1.6 one week ago when I went to hospital. Mysterious. They asked if I had any infections but I can't think of anything major apart from a wisdom tooth playing up a bit and a couple of sore nails. I do have a slightly runny nose though.
I feel like this chemo will be a bit easier, the mouth taste is less bad and I'm not feeling nauseous. Yay!
