Forum Discussion
Sister
6 years agoMember
It's good to have a plan! You won't know for sure how you will tolerate chemo until you do it - some people sail through and keep doing everything the way they've always done; most of us manage to do some things. I was on AC-T and I found that the day of the chemo on AC, I was exhausted. Then the next few days were write-offs (the meds I took for nausea made me sleep). Then I would slowly come back. Keep a notepad somewhere handy and jot down how you're feeling as it will give you a better indication for each treatment. If the meds you're sent home with don't cut it, make sure you know who to call for better stuff - don't suffer in silence. My first weekend was a nightmare with nausea & reflux because I didn't know what to do. Once I had new medication, I was fine. Make sure, at least for the first one, that you have someone to take you and bring you home and given you have young kids, you should have someone home for the first few days until you know how you're going to fare. If family or friends offer to help, have some practical things that they can do - school runs, sports activities, whatever... (don't forget to let the school know if someone else is likely to pick up your kids during this time). But yes, I think your husband does need to factor in more time at home. Dose dense is supposed to be good if you can manage it and I think they often suggest it now for younger women. Do be aware that the effects of chemo are cumulative so you will probably get tireder towards the end and no-one knows what tiredness means until you experience the chemo version.
Re: cold caps. Absolutely give it a go. It does add a lot of time on to the treatment but if it works, great. For me, it didn't work well enough so I stopped doing it - it was less upsetting to buzz it all off than to see a wide strip of baldness that I couldn't comb over. I was mainly doing it to keep things more normal for the kids but they were all for me quitting when it wasn't working. If it had worked better though, I would have kept it up. Make sure that the cap is pressed down firmly on all parts of your head - it has to be in contact to work. I'm sure others who were more successful will jump on.
Use the next few days if you can, in getting things ready. You may want to get a dental checkup if you haven't had one recently. Set up online shopping (makes things much easier) and get a Netflix account if you haven't got one (it's amazing how many of us have bingewatched TV during chemo). Get in some essentials to make life easier - you may not know what you will need but who needs a late night chemist run. This is what others on this site suggested to me:
Coloxyl with Senna
Movicol
Gastrostop
Biotene mouthwash
Very soft toothbrush (toddler type)
Baby shampoo & wide toothed comb (if cold-capping)
Toilet wipes (your bottom may thank you)
Disinfectant wipes (when you're out and about & things look a bit grotty)
Hand sanitiser (same reason)
The list doesn't look long enough so I may have forgotten something. The only thing that I didn't use was the Movicol.
You may also want to check with your oncology clinic if they recommend an exercise class. It's now recognised that for a number of reasons (chemo more effective, heart health, recovery) that exercise during chemo is really beneficial and many clinics have places they refer to so that you're doing it under supervision. YWCA run an aqua based program called Encore if you can access it. Otherwise, just walking will be better than nothing.
Take care.
Re: cold caps. Absolutely give it a go. It does add a lot of time on to the treatment but if it works, great. For me, it didn't work well enough so I stopped doing it - it was less upsetting to buzz it all off than to see a wide strip of baldness that I couldn't comb over. I was mainly doing it to keep things more normal for the kids but they were all for me quitting when it wasn't working. If it had worked better though, I would have kept it up. Make sure that the cap is pressed down firmly on all parts of your head - it has to be in contact to work. I'm sure others who were more successful will jump on.
Use the next few days if you can, in getting things ready. You may want to get a dental checkup if you haven't had one recently. Set up online shopping (makes things much easier) and get a Netflix account if you haven't got one (it's amazing how many of us have bingewatched TV during chemo). Get in some essentials to make life easier - you may not know what you will need but who needs a late night chemist run. This is what others on this site suggested to me:
Coloxyl with Senna
Movicol
Gastrostop
Biotene mouthwash
Very soft toothbrush (toddler type)
Baby shampoo & wide toothed comb (if cold-capping)
Toilet wipes (your bottom may thank you)
Disinfectant wipes (when you're out and about & things look a bit grotty)
Hand sanitiser (same reason)
The list doesn't look long enough so I may have forgotten something. The only thing that I didn't use was the Movicol.
You may also want to check with your oncology clinic if they recommend an exercise class. It's now recognised that for a number of reasons (chemo more effective, heart health, recovery) that exercise during chemo is really beneficial and many clinics have places they refer to so that you're doing it under supervision. YWCA run an aqua based program called Encore if you can access it. Otherwise, just walking will be better than nothing.
Take care.