Well what a stressful mth I have had went to have my eyes checked a mth ago was told I had a tumour behind the which is related to bowl cancer and I should go and have a test for it and was refered to an eye surgeon. Finally got results back from bowl cancer test all good came back negative. Well after waiting 2hrs after my appointment time as the eye surgeon was behind in appoiintments I got in , mind you if I had turned up 2hrs late I bet I would not get in. The surgeon cheked me out and said I was wrongly diagnoised and there was no tumour , nothing relating to bowl cancer. I am still trying to come to terms with the breast cancer and to have this on top really messed with my emotions, what a rollercoaster ride it has been. Well on the positive side I have met some wonderful ladies through this sight who I call my angels. You ladies are always there for each of us never judging , always supportive and for that I feel truely bleesed. Big hugs Debbie xxxxxxxxxxxxxxxxx

OMG Debbie,that's terrible.You poor thing getting put through the wringer for nothing.Bet it didn't cost you nothing.I suppose the good thing to come out of it is that your eyes are ok and you don't have bowel cancer.But what a stressful time you must have had waiting for results.Hope this month brings some good times for you. luv Tonya xx

Yes it was so stressful and it cost me$ 210.00 for the visit .As well as that my brother inlaw had been told he had cancer 2 weeks before me and had his ear taken off and some area at the side of his head due to tumours in the ear and side of head. He was also missed diagnosed told it was nothing had been to the Dr 3 times and had one lump taken out . Lump was not checked out , now having radiation and chemo near the brain , but he is doing well. I read that you said vitamin D and flaxseed oil was good, is it ok take it if your on Tamoxifen as I remember my oncologist saying some vitamins and tablets reduce the effect of the Tamoxifen. I see my gyno next week to see about having my ovaries out or a hysterectomy . So over Drs visits. Big hugs Debbie xxxxxxxxxxxxxx

Hi Debbie I was told by the pharmacist not to take flaxseed oil as it is a phyto oestrogen as I had a big bottle ready to take. Vit D is fine I am taking that the oncologist put me on it as my level was low. There is a really good website that tells you about the ok things to take (herbal remedies) and have now checked that every time I go to try something. It's www.mkskcc.org/mskcc/html/11570.cfm I had been taking kelp (source of iodine) for about a month and then when I checked it says not recommended for oestrogen dependant tumours so have had to stop it. I am taking fish oil, glucosamine green lip mussel and a multi vit the aches and pains from chemo and lack of oestrogen have nearly gone just the hot flashes to contend with! I have a booklet called Breast Cancer and early menopause and it has lots of information about medication and other treatments. It's from the National Breast and Ovarian Cancer Centre www.nbocc.org.au It's been very helpful in what can be a mine field to find out what is ok or not! Good luck Sarah

So much to get take in. WIill check out web site. Big hugs Debbie

hi debie, I read some of your posts and yeah you are really having a bad time , this whole cancer thing is f......... but here we are and we have to find a way through it to get back in control of our lives and survive. moderator note: additional text edited for reportable content

A journey it is! | BCNA Online Network

18 Replies

Deeay
Member
15 years ago
I'm so pleased that something posiyive can come from this for you Ziggy. Something good has to!

I'm off for a brain scan and PET scan on Tuesday to check for spreading. Its so awful not knowing.......
TonyaM
Member
15 years ago
Ziggy you are awesome! I like your plan.

Tonya xx
ziggy
Member
15 years ago
i freaked out we all did and thought if my oncologists gave me that time thats it. then i talked to a couple of people with the same sort of cancer etc and they have lived years beyond whathey were told and there cancer is under control and they are living normal lives. i had one of my cookies and decided i will take control, not just accept that horrific fate. i will do everthing i can to prove them wrong. 1st bone injection today, radio apt monday. a lot rides on my ct scan on friday to see whats going on in my liver and if there are any other issues in there. so just have to wait and see.thanks for your input. we are planning a big trip to wa very soon with some good friends and we are getting my life insurance and sper because we can and that will get rid of our morgage which is great and then if all goes well for me it will be great not to have a morgage. my beautiful hubby can work a couple of days a week and we can all focus on enjoying life in the paridice we live in and enjoy our friends and family and beautiful boy for as long as we can.
Deeay
Member
15 years ago
How are you going Debbie? Hope you are feeling happier these days, although it must be a worry with your daughter having trouble. Hope all is ok.

Yes it DOES seem like one thing after another doesn't it!

Best advice I was given this second time around with BC is 'one day at a time. 1 step at a time, 1 hurdle at a time'. It works!
Deeay
Member
15 years ago
Hi Ziggy,

I'm so sorry to hear your news. As Tonya said, there are really good drugs to slow down or even halt the progression of the cancer. Lets all hope you can have lots of good years keeping the cancer at bay.

Have you thought about seeing if there is a clinical trial you can take part in? They usually have the lastest drugs that aren't yet available for mainstream use.

You prove that Oncologist wrong Ziggy and go girl! Enjoy that lovely husband and child of yours.

Big hug. Could be any one of us you know.......
TonyaM
Member
15 years ago
Life can be so unfair Ziggy.You are way to young to go through all of this.You seem like a fighter though and if you can keep it under control with treatment then some day soon they may even have better drugs etc.None of us know when our cancer will flair up again and reading your words makes me think how precious life and loved ones are,and to make the most of each day. Have you read Ian Gawler's or Patrea King's books?- makes you think that anything is possible.I am reading abook about a young man born with no arms or legs and he does everything-surfs,travels etc.I am amazed at the human spirit and what we can overcome.I know you are in a scary place right now but stay strong and hopeful.Thinking of you on Thursday.

Tonya xx
TonyaM
Member
15 years ago
Life can be so unfair Ziggy.You are way to young to go through all of this.You seem like a fighter though and if you can keep it under control with treatment then some day soon they may even have better drugs etc.None of us know when our cancer will flair up again and reading your words makes me think how precious life and loved ones are,and to make the most of each day. Have you read Ian Gawler's or Patrea King's books?- makes you think that anything is possible.I am reading abook about a young man born with no arms or legs and he does everything-surfs,travels etc.I am amazed at the human spirit and what we can overcome.I know you are in a scary place right now but stay strong and hopeful.Thinking of you on Thursday.

Tonya xx