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MissyMoo's avatar
MissyMoo
Member
12 years ago

6 mths down

So, 6 months of Abraxane and Herceptin every week plus Xgeva every month have passed with little to complain about. Tiredness is normal, still unable to exercise without being exhausted after, hair still just hanging in there - it is very thin now but I have managed not to wear the wig. I have been very fortunate.

So, going off the weekly protocol meant that at the last appointment I had Abraxane and triple the dose of Herceptin to last till the next appointment in 3 weeks' time. Initially I felt fine but as days passed I began to feel sub-standard. Hard to describe but overall just not right. I also had increased joint pain, extreme reflux, headaches. I don't know if this is to be normal for me, if it is just a passing experience or if I am truely sick from some of the bugs that are circulating at school at the moment.

Again, time will tell.

I have now been for the 2nd of the 3 weekly amounts and all my complaints are still there. The bonus is that I no longer have the weird almost nausea that made me want to continually consume food or drink.  It is possible that my reflux is being increased because I am currently 8kg over my normal....hmmmm. If I manage to lose weight now that I am not on Abraxane and it decreases then that would be terrific.

My aches are so extreme that I have been unable to fall asleep without Panadol and have been woken and taken Panadol to fall back asleep...new territory for me.

I am going for Reiki massage tomorrow after work and hopefully will see some improvement in my body's responses to the drug and its fight to put me back together and strong and energetic.

 

Wendy

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