5 years is a milestone with TNBC
Right from the start I was told that if we get to 5 years NED then those of us with TNBC are not in remission......we are cured (cause for a happy dance)!!!
I was told that there was a high probabi...
Forum Discussion
Hi Deanne..... it is interesting.
Each one of us have a different journey to make.
Each of us have different diagnosis. I have found it particularly isolating being a grade 3 stage 3 TNBC.
When I was first diagnosed, the receptionist at the oncologist's rooms turned round to her colleague and said this is the stage 3 Triple Negative. At that stage I didn't know that I was TNBC, nor did I know what it meant. I remember at the time thinking that I had to be "different" because she didn't call me by name, she called me by diagnosis.
It wasn't until I came home before I started my chemo that I realized the implications of TNBC....and really that was only after my breast care nurse spoke to me and said that she heard about my diagnosis.
My own primary carer (GP) has never had a TNBC patient.
So it was a learning curve for everyone.....but he has been wonderful.
The TNBC seems to respond well to chemo but there is no after care offered. Unlike the ladies who are hormonal receptive, we don't get tablets for five years.....however, I was told that if I get to five years, then I am cured.... then in the next breath he (the oncologist) told me to go home and do whatever I wanted to and not put off anything that I wanted to do - don't rush at it and wear yourself out.
Personally I have my own theories.....and I am confident that I will get to the end in triumph!
I am very aware that not everyone will have the same attitude to this disease.....not everyone will have the same support (or lack of it)....not everyone will have the same diagnosis....not everyone will have the same response to treatment....
It is an individual journey....but at least through this forum, we have people out there who can honestly say "I understand".