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arpie's avatar
arpie
Member
5 years ago

3 Year check 'all clear' ... but concerned about my hip

Hi guys

I had a telecon chat with a locum Rad Onc as my 3 years 'from detection' scans (MG & US) were done 2 weeks ago & all the reports are good.   So that is TERRIFIC!!  (Unlike the 2 previous years, where 2 of my Xmas/New Years were totally destroyed by the initial biopsy/Diagnosis & another stuffed up biopsy in Dec last year!)

A couple of weeks prior to that, I'd had a CT on my left hip and a bone scan as I am having continual hip pain for no known reason - 3 months now! It is VERY annoying .... I really only notice it at night when I roll onto my left side ... so I was pleased when the reports showed nothing sinister, cancer wise - but shows lots of degeneration & bulging discs & the possibility of bursitis!

My GP wasn't that interested in getting the hip checked, so I contacted my Onc & she was onto it straight away - hence the CT & Bone Scan! The Rad Onc is going to recommend (in his report to the GP) that I get at least an ultrasound on the hip to see if it IS bursitis.  I thought bursitis was usually from an injury .... and I am not aware of any.

I will also ask about an appointment with a rheumatologist as well ... I know I have arthritis for 20 years now - but I have never been definitively diagnosed (it started when I went thru menopause.)  My mother had rheumatoid arthritis (with the extremely crooked fingers) where as mine are only mildly bent so far. All the knuckles are swollen (can't get my wedding ring off without cutting it!). My sister has poly myalgia rheumatica and is on prednisone now.

My really sad news is that my wonderful good friend and BC mentor in Qld, Debbie, passed away from mets last week.  It was Debbie who 'put me onto' BCNA and am forever in her debt for that. She was a wonderful support for me throughout my diagnosis, surgery & ongoing treatment - we kept in touch regularly & she faded fast in the previous few weeks. Her family & friends are all devastated. 

She has earned her angel wings. xx

Take care, stay well xx

14 Replies

  • Hi @arpie, I am thinking of you. I wanted to let you know that I often read your posts as I was diagnosed at the end of last year and your words of advice and encouragement are so appreciated. Thank you for being the support that your dear friend Debbie has been to you, there are many of us here who benefit so much from your thoughtfulness and advice. Sending you hugs. 
  • Hi @arpie I am sad you are having a lousy fortnight.Losing a friend is never easy, even if we are prewarned. Add the physical pain on top of it and it makes you frustrated and angry. Sending big hugs to you lovely lady and thank you for being there for me.