12 days since lumpectomy and still no results
I had a wide local excision and lymph node removal 12 days ago and still have not been given any results. I was told the multi-disciplinary team was meeting today on my case and the results would defi...
Forum Discussion
Thanks, everyone. I’ve been telling everyone who will listen at the hospital how anxious I’ve been feeling and how much I would really appreciate getting results when they are available. It worked! I got a call late yesterday from the surgeon’s fellow, who had finished his placement but called because he said he knew I’d be anxious waiting. He was very kind to do that.
There was good news - they got all the tumour out (clear margins) and the lymph nodes were negative. But there was bad news - it’s a more aggressive faster growing cancer (grade 3). That was a shock I wasn’t expecting. I’ve been doing a lot of crying. My prognosis is significantly worse and I’ll have a more aggressive treatment program. But at least I’m getting my crying out of the way and dealing with the shock before my appointment next week so I’ll be able to listen to what the surgeon says and prepare some questions to ask.
I’m taking my 30yo daughter with me to the appointment and I’ll ask if I can record it on my phone. I think I’ll be referred to a medical oncologist to discuss chemotherapy and the results of genomic testing of whether chemo will help. I think they might also be doing genetic testing to find out why my cancer is aggressive, despite being ER+, PR+ and HER2-, but that will take months to get results.
Good luck,@Fernweh. I agree it’s important to be assertive. A few tears might help too. And thanks when someone takes the time to give you information.
I’m planning to tell the surgeon, who I’ve only met for 3 minutes, that I do better with time to think about things and more rather than less information. It must make it easier for the surgeons and other doctors to have patients who aren’t highly anxious and stressed and not taking in what they’re told.
Thanks for the link to questions, @arpie.
There was good news - they got all the tumour out (clear margins) and the lymph nodes were negative. But there was bad news - it’s a more aggressive faster growing cancer (grade 3). That was a shock I wasn’t expecting. I’ve been doing a lot of crying. My prognosis is significantly worse and I’ll have a more aggressive treatment program. But at least I’m getting my crying out of the way and dealing with the shock before my appointment next week so I’ll be able to listen to what the surgeon says and prepare some questions to ask.
I’m taking my 30yo daughter with me to the appointment and I’ll ask if I can record it on my phone. I think I’ll be referred to a medical oncologist to discuss chemotherapy and the results of genomic testing of whether chemo will help. I think they might also be doing genetic testing to find out why my cancer is aggressive, despite being ER+, PR+ and HER2-, but that will take months to get results.
Good luck,@Fernweh. I agree it’s important to be assertive. A few tears might help too. And thanks when someone takes the time to give you information.
I’m planning to tell the surgeon, who I’ve only met for 3 minutes, that I do better with time to think about things and more rather than less information. It must make it easier for the surgeons and other doctors to have patients who aren’t highly anxious and stressed and not taking in what they’re told.
Thanks for the link to questions, @arpie.