The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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for my oncologist appointment is doing my head in","id":"message:76821","revisionNum":1,"repliesCount":25,"author":{"__ref":"User:user:22016"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"conversation":{"__ref":"Conversation:conversation:76821"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:76821"},"body@stripHtml({\"truncateLength\":200})":" My GP sent me for an ultrasound after I had an appointment to get lumps in my armpit checked out. The ultrasound was on 14/6 and 4 smaller lumps were found and a total of 2 larger near my armpit. I ...","body@stringLength":"2149","rawBody":"
My GP sent me for an ultrasound after I had an appointment to get lumps in my armpit checked out. The ultrasound was on 14/6 and 4 smaller lumps were found and a total of 2 larger near my armpit. I was asked to come back for a biopsy and mammogram. Interestingly the mammogram was completely fine - no evidence of anything. A core biopsy was done on the larger armpit lumps and 2 FNA on the smaller lumps (I’m fairly certain that’s what happened) on 18/6/19.
\n
I got the news of my diagnosis after work on Thursday 20th June and since then —
\n
Blood tests & CT scans 21/6 Scans clear
\n
Breast surgeon appointment 21/6
\n
Brain scan and full body bone scan 24/6 All clear
\n
Second appointment with breast surgeon 25/6.
\n
Went back to GP to to get medical certificate and copies of pathology 27/6
Second biopsy on smaller primary tumours & 4 clips inserted 28/6.
\n
At my second appointment my breast surgeon said it appears there is cancer in my LNs and she will discuss my case with the MDT at their afterwork meeting on 27/6, she also said I should get a phone call by Friday 28/6 to set up oncologist appointment as my treatment will start with chemo.
\n
It’s the waiting and waiting and waiting for my oncologist appointment that is doing my head in.
\n
I called Friday and today and the people who answer the phone are lovely but say they will call me after my doctor goes through my case. The second biopsy results probably are completed. I don’t know all the details yet and I feel that after second biopsy I need to be open minded and prepared that my BC details may change.
\n
But what I do know from the updated (24/6) first biopsy report. Right breast. stage II grade 3, invasive carcinoma, ER weakly+, PR-, HER2-
\n
I’m trying to stay positive but I feel frustrated. Family and friends have been supportive & caring.
\n
I’ve had a couple of meltdowns in the last 10 days & I’m home alone tonight and dwelling on my thoughts.
\n
How long is reasonable to wait for an appointment or what have others experienced?
My GP sent me for an ultrasound after I had an appointment to get lumps in my armpit checked out. The ultrasound was on 14/6 and 4 smaller lumps were found and a total of 2 larger near my armpit. I was asked to come back for a biopsy and mammogram. Interestingly the mammogram was completely fine - no evidence of anything. A core biopsy was done on the larger armpit lumps and 2 FNA on the smaller lumps (I’m fairly certain that’s what happened) on 18/6/19.
\n
I got the news of my diagnosis after work on Thursday 20th June and since then —
\n
Blood tests & CT scans 21/6 Scans clear
\n
Breast surgeon appointment 21/6
\n
Brain scan and full body bone scan 24/6 All clear
\n
Second appointment with breast surgeon 25/6.
\n
Went back to GP to to get medical certificate and copies of pathology 27/6
Second biopsy on smaller primary tumours & 4 clips inserted 28/6.
\n
At my second appointment my breast surgeon said it appears there is cancer in my LNs and she will discuss my case with the MDT at their afterwork meeting on 27/6, she also said I should get a phone call by Friday 28/6 to set up oncologist appointment as my treatment will start with chemo.
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It’s the waiting and waiting and waiting for my oncologist appointment that is doing my head in.
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I called Friday and today and the people who answer the phone are lovely but say they will call me after my doctor goes through my case. The second biopsy results probably are completed. I don’t know all the details yet and I feel that after second biopsy I need to be open minded and prepared that my BC details may change.
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But what I do know from the updated (24/6) first biopsy report. Right breast. stage II grade 3, invasive carcinoma, ER weakly+, PR-, HER2-
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I’m trying to stay positive but I feel frustrated. Family and friends have been supportive & caring.
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I’ve had a couple of meltdowns in the last 10 days & I’m home alone tonight and dwelling on my thoughts.
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How long is reasonable to wait for an appointment or what have others experienced?
"},"Conversation:conversation:76821":{"__typename":"Conversation","id":"conversation:76821","solved":false,"topic":{"__ref":"ForumTopicMessage:message:76821"},"lastPostingActivityTime":"2019-07-11T17:50:26.000-07:00","lastPostTime":"2019-07-11T17:50:26.000-07:00","unreadReplyCount":25,"isSubscribed":false},"ModerationData:moderation_data:76821":{"__typename":"ModerationData","id":"moderation_data:76821","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:76821_1":{"__typename":"Revision","id":"revision:76821_1","lastEditTime":"2019-07-01T05:04:38.000-07:00"},"ForumReplyMessage:message:76834":{"__typename":"ForumReplyMessage","id":"message:76834","conversation":{"__ref":"Conversation:conversation:76821"},"author":{"__ref":"User:user:21752"},"revisionNum":1,"uid":76834,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"subject":"Re: Waiting for my oncologist appointment is doing my head in","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:76834"},"parent":{"__ref":"ForumTopicMessage:message:76821"},"body":"Fantastic to hear that you've gotten an appointment :) Most first oncology appointments are very explanatory and usually cover most of the questions you have; take someone with you who can write stuff down so you can listen. I guess one question I've thought of from your story is \"why chemo first instead of surgery?\"
I imagine your granddaughter is a great joy in life and trust me, when you're in the midst of chemo those joys bring you a lot of comfort. You might not be able to commit to the Friday pick up anymore - will depend on your regime (how frequent and the day of treatment you get allocated to) and how chemo affects you. It effects us all differently. For example, I get chemo on Tuesdays. My first combo of drugs I was pretty yucky from the very next day, this current drug Wednesdays Im great its Thursdays everything turns bad. You wont know until you start.
Spending time with her if she has a virus during chemo would not be advisable, as kitkatb said we try to avoid sick people/crowds etc...but remember there's men and women who have their own young children and go through chemo, they manage. Some people still work and manage to not get sick. But I don't think excluding her for 2-6 months (depending on your chemo regime) would be good for your mental health personally. ","body@stringLength":"1354","rawBody":"Fantastic to hear that you've gotten an appointment :) Most first oncology appointments are very explanatory and usually cover most of the questions you have; take someone with you who can write stuff down so you can listen. I guess one question I've thought of from your story is \"why chemo first instead of surgery?\"
I imagine your granddaughter is a great joy in life and trust me, when you're in the midst of chemo those joys bring you a lot of comfort. You might not be able to commit to the Friday pick up anymore - will depend on your regime (how frequent and the day of treatment you get allocated to) and how chemo affects you. It effects us all differently. For example, I get chemo on Tuesdays. My first combo of drugs I was pretty yucky from the very next day, this current drug Wednesdays Im great its Thursdays everything turns bad. You wont know until you start.
Spending time with her if she has a virus during chemo would not be advisable, as kitkatb said we try to avoid sick people/crowds etc...but remember there's men and women who have their own young children and go through chemo, they manage. Some people still work and manage to not get sick. But I don't think excluding her for 2-6 months (depending on your chemo regime) would be good for your mental health personally. 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