Treatment after Mastectomy
Hello all, I am new to this forum as I was only diagnosed with invasive lobular cancer grade 2 (multifocal with 4 tumours) on my right breast in late March and undergone total skin sparing maste...
Forum Discussion
Hi @dada - so sorry to see you here, but you're in the right spot to ask any question you can think of, & be assured of an honest answer, as we've 'been there, done that'!
Where abouts are you (town/city) as we have members pretty well everywhere & they may be able to advise you of additional services available in your area. You can edit your profile to indicate your location.
Also - your 'rough age'? Often Tamoxifen is given to pre menopausal women (it was the original hormone blocker from decades ago), with Aromatase Inhibitors now being popular with post menopausal women (like me at 66.)
Like you, I had ILC, with Breast conserving lumpectomy and immediate 'recon/tidy up'. I had clear margins & my 3 nodes were also clear - I had 2 small tumours, also Grade 2, Or+ & Er+ too.
Yes, ILC is considered a sneaky one (with legs - like the advert on TV) so they hit it aggressively, to make sure they mop up any 'randoms'!
My medical team opted for Radiation only for me, as mine were small & caught early - which I had done in a regional hospital, staying onsite for 4 weeks in the Rotary Lodge at minimal cost (as I live 1.5hr away from the closest hospital that does the treatment.) My radiation was done in the public system & there was no charge. I started on Letrozole for 6 weeks about a month or so after radiation, then swapped to Exemestane due to some nasty side effects & am now having a break from it after 6 months and may go to Anastrozole!!
I finished my active treatment this time last year.
All the best with your meeting with your Onc ..... don't forget to record it, to go over it later, as it can be difficult to remember everything that is said at the time. xx
Where abouts are you (town/city) as we have members pretty well everywhere & they may be able to advise you of additional services available in your area. You can edit your profile to indicate your location.
Also - your 'rough age'? Often Tamoxifen is given to pre menopausal women (it was the original hormone blocker from decades ago), with Aromatase Inhibitors now being popular with post menopausal women (like me at 66.)
Like you, I had ILC, with Breast conserving lumpectomy and immediate 'recon/tidy up'. I had clear margins & my 3 nodes were also clear - I had 2 small tumours, also Grade 2, Or+ & Er+ too.
Yes, ILC is considered a sneaky one (with legs - like the advert on TV) so they hit it aggressively, to make sure they mop up any 'randoms'!
My medical team opted for Radiation only for me, as mine were small & caught early - which I had done in a regional hospital, staying onsite for 4 weeks in the Rotary Lodge at minimal cost (as I live 1.5hr away from the closest hospital that does the treatment.) My radiation was done in the public system & there was no charge. I started on Letrozole for 6 weeks about a month or so after radiation, then swapped to Exemestane due to some nasty side effects & am now having a break from it after 6 months and may go to Anastrozole!!
I finished my active treatment this time last year.
All the best with your meeting with your Onc ..... don't forget to record it, to go over it later, as it can be difficult to remember everything that is said at the time. xx