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- UnicornkissesMemberTake Clarytyne at the same time as the Neulasta injection and for the 4-5 days after. It will really help with the pain. I only needed Panadol a few times when doing it that way.
I had Neulasta after every chemo dose. - primekMemberNow I guess it may be worthwhile considering if you need genetic counselling kniwing your family history now. So good you are being supported by your maternal Aunts.
- Michelle49MemberYes thank you Jane. When they changed the law on contactable information my sister , not biological but who was also adopted, got her information straight away I left mine about another 2 years before I got enough courage to get my bio. I took another year before I traced one of my uncles but my daughter rang them on my behalf and made contact, it was then I found out that Margaret had passed away 2 years previously. Knowing what I know now even if I had contacted her before she died, she wouldn't have wanted contact as she was already diagnosed and when she was put into hospital she kept it from all her family as she didn't want then to worry because there was no point.
We can always say " in hindsight " but as in the case of breast cancer , I know follow the motto act now don't leave it for tomorrow - Thank goodness you were able to find your family in 2002 - learning about your biological mother's cancer would have given you an increased awareness you may not have had.
How wonderful you now have contact with your aunts, it has been a blessing in more ways than one! Meant to be. Hope you are doing OK @Michelle49. Jane xx - Michelle49MemberJust got off the phone to my (biological)aunt , as I was adopted I didn't know a lot of medical history of my biological family, since I found them in 2000 I found out that my biological mother , Margaret had breast cancer and died from a bleed on the brain after a fall. My aunt talked to one of her sisters and got the full story , apparently Margaret was hobbling around on a walking stick for 3 months while Pauline, sister , badgered her to go to the doctors. After 2 weeks of tests they came back with metastasise breast cancer ,which had spread to the brain,bones,liver and lungs and she was given 12 mths. She was placed into a hospital 2 months later, she fell over and got a bleed on her brain near the cancer and died 6 months after diagnosis .
both of my aunties are so proud of me that I didn't take after Margaret and as soon as I noticed something wrong I got in and seen a doctor and got it sorted, they are now tracing all her medical records up for me so I have it there if needed for reference if needed .
I must say they are very special ladies to do this for me as even though I talk to Susan more than the rest of the family they are given me even more support than I already have with my family here and I've got to say that I'm lucky to know them - primekMemberI needed to take stemitil 3 times daily and then half hour before meals I took ondasatron wafers (with a sugerless mint) so I didn't feel ill. I lived on toasted cheese sandwiches and orange juice with soda water. I managed a normal meal at night. I saw a dietitian as I was still gaining weight...lol. Make sure you take regular medication to help with nausea. I also had terrible reflux so I ended up on nexium twice a day also. That really helped.
- Michelle49MemberThank You I've just taken panadol osteo which is 675mg compared to normal panadol 500mg woks pretty good and keeping up fluids mostly flat lemonade seems to work and sarsaparilla as well which I love. I'm eating and drinking what I like just to get by but there's not much I can stomach so I'm going to talk to the nutritionist next time to see what can be done because I know I'm not eating enough
- primekMemberApparently claratyne can help with that pain from neulasta. I had the pain 24 to 48 hours after the injection for 1 day only. The rest I put down to chemo. I had a thing for tuna patties. Take the pain killers. Rest when you need and keep up the fluids. Kath x
- Michelle49MemberI've had the injection to boost my white blood cells , now I'm sore all over and I don't know what's worse having low white cells or having the sideffects from the needle. Symptoms showed up seven days after the needle and I'm having strong panadol to just get to move around . I can't stomach most food only salmon rissoles and zucchini slice are the only foods that I don't feel like I'm nauseous after eating
- Michelle49MemberThanks guys, I had a wonderful time out with my family for my early 50th couldn't eat as much as I normally would but that was alright my husband ate what I left ,lol and it was great as everyone brought all my great nieces, nephews and grandkids so we had 9 kids running around ages fron 7-2 it was normal and I loved every minute of it . My brothers and sisters gave me a voucher to get a massage and get my eyebrows tattooed best gift every.
Yes soldiercrab Marita is my breast care nurse I didn't get to see her last time but she will be there for my next chemo and I'll have a good talk to her .
Unicorn kiss thank you that was very helpful information, I have to get my blood tests done tomorrow for my next chemo so I'll see whether the antibiotics that they have given me after leaving hospital changed anything as I feel a bit better now, still get tired but no headaches or dizziness