Terrified of what lies ahead!

Hi CathyMac - I was diagnosed seven years ago and phoned my adult son to tell him the news (he lives in Oregon, USA). He replied, 'Gee Mum, how you going to play your hand?' It was gold, the best thing anyone has asked or said in seven years. He was actually suggesting that I needed to think about how and what I was going to do, think and be, how I was going to adjust to a life that had tipped me upside down. Consequently I gave myself permission to be how I needed or wanted to be on any given day, learned to say both 'yes' and 'no'. Cried when I felt sad as the tears release and relax. This forum is also GOLD! I have one suggestion, consider taking someone with you to every appointment and ask them to make notes - I found this invaluable and I was more relaxed as I knew someone else was also listening. I would love to see your son in his pink suit, what a fine young man he must be!