Forum Discussion
Rona
2 years agoMember
Struggling through Chemo
Hi all, My nurse has just introduced me to this group. I’m hoping to connect and share my story and hopefully somehow feel better. After being diagnosed and a short time later having a mastectomy a...
Rona
2 years agoMember
Congratulations Katie! I’m glad to hear they had a bell for you to ring. I felt a bit emotional leaving there for the last time but I’m over it now 😂.
They certainly aren’t wasting any time for you Katie, I’ve only just had my mapping done yesterday too. I don’t want to alarm anyone bout the radiation but for me I’m actually terrified. I had cancer in my left breast and had a mastectomy (was made aware yesterday that treatment is different for left and right) so I have to have a hose with a mouth piece to breathe through, with my nose clamped off! I have to inhale to full capacity then the air is switched off! I then have to hold my breath for 30 seconds whilst in the machine having radiation delivered. This will occur up to ten times per session 😢. This is to keep my heart from being radiated as much as possible……. I had a dummy run yesterday and I am not looking forward to this at all!! I just have to keep a strong head to get me through. I had no idea this is what it would be like. I have constant pain in my left arm and was actually grateful I didn’t have cancer on the right…… now I’m not so sure 😩.
I also had an oncologist appointment on Friday, she wants me to start tamoxifen already, have a bone density scan blah blah. I’m just over it all tbh…..I’m still struggling with fatigue and the taste thing. I’m still losing weight and I just want a break and my old life back…….I should be grateful I know for having my life saved but negative Nancy has kicked in.
They certainly aren’t wasting any time for you Katie, I’ve only just had my mapping done yesterday too. I don’t want to alarm anyone bout the radiation but for me I’m actually terrified. I had cancer in my left breast and had a mastectomy (was made aware yesterday that treatment is different for left and right) so I have to have a hose with a mouth piece to breathe through, with my nose clamped off! I have to inhale to full capacity then the air is switched off! I then have to hold my breath for 30 seconds whilst in the machine having radiation delivered. This will occur up to ten times per session 😢. This is to keep my heart from being radiated as much as possible……. I had a dummy run yesterday and I am not looking forward to this at all!! I just have to keep a strong head to get me through. I had no idea this is what it would be like. I have constant pain in my left arm and was actually grateful I didn’t have cancer on the right…… now I’m not so sure 😩.
I also had an oncologist appointment on Friday, she wants me to start tamoxifen already, have a bone density scan blah blah. I’m just over it all tbh…..I’m still struggling with fatigue and the taste thing. I’m still losing weight and I just want a break and my old life back…….I should be grateful I know for having my life saved but negative Nancy has kicked in.