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Since then I’ve had mammograms, ultrasound, biopsy, radioactive tracer injec...","body@stringLength":"1272","rawBody":"Hello All, A little over 3 weeks ago I saw a dimple on my breast that was only obvious when I raised my arm over my head. Since then I’ve had mammograms, ultrasound, biopsy, radioactive tracer injected and as of yesterday, a wide excision tumour and node removal. My breast, urine and poop are all bright blue 😆 Now the waiting for the results begins.
I received the call to say that it looked like I had a malignant tumour while I was quite literally standing in front of 60 students on an excursion (as the lead teacher). It took every ounce of my willpower to hold it in until I got home! Since then I’ve had some very low moments but I’ve tried to approach this positively and with an attitude of ‘I can beat this’. Fortunately I’m surrounded by supportive colleagues, friends and family.
With the support of my family, and if the biopsy is favourable, I’m planning a bilateral mastectomy and reconstruction. My surgeon says there are other options but I’ve lost faith in my breasts. For me I think this is the best path back to not thinking about this every waking moment.
What a whirlwind it’s been. I’ve never had to make so many decisions so quickly. How I wish I had a crystal ball 🔮 ","kudosSumWeight":0,"postTime":"2018-11-22T22:50:26.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:lumpectomy","text":"lumpectomy","time":"2025-02-12T19:23:18.414-08:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDI","node":{"__typename":"Tag","id":"tag:mastectomy","text":"mastectomy","time":"2025-03-25T05:01:41.271-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDM","node":{"__typename":"Tag","id":"tag:Reconstruction","text":"Reconstruction","time":"2024-10-22T16:42:44.606-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:55876_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":571},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"customFields":[],"body":"Hello All, A little over 3 weeks ago I saw a dimple on my breast that was only obvious when I raised my arm over my head. Since then I’ve had mammograms, ultrasound, biopsy, radioactive tracer injected and as of yesterday, a wide excision tumour and node removal. My breast, urine and poop are all bright blue 😆 Now the waiting for the results begins.
I received the call to say that it looked like I had a malignant tumour while I was quite literally standing in front of 60 students on an excursion (as the lead teacher). It took every ounce of my willpower to hold it in until I got home! Since then I’ve had some very low moments but I’ve tried to approach this positively and with an attitude of ‘I can beat this’. Fortunately I’m surrounded by supportive colleagues, friends and family.
With the support of my family, and if the biopsy is favourable, I’m planning a bilateral mastectomy and reconstruction. My surgeon says there are other options but I’ve lost faith in my breasts. For me I think this is the best path back to not thinking about this every waking moment.
What a whirlwind it’s been. I’ve never had to make so many decisions so quickly. How I wish I had a crystal ball 🔮 "},"Conversation:conversation:55876":{"__typename":"Conversation","id":"conversation:55876","solved":false,"topic":{"__ref":"ForumTopicMessage:message:55876"},"lastPostingActivityTime":"2018-11-25T21:23:26.000-08:00","lastPostTime":"2018-11-25T21:23:26.000-08:00","unreadReplyCount":25,"isSubscribed":false},"ModerationData:moderation_data:55876":{"__typename":"ModerationData","id":"moderation_data:55876","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:55876_1":{"__typename":"Revision","id":"revision:55876_1","lastEditTime":"2018-11-22T22:50:26.000-08:00"},"ForumReplyMessage:message:55877":{"__typename":"ForumReplyMessage","id":"message:55877","conversation":{"__ref":"Conversation:conversation:55876"},"author":{"__ref":"User:user:20700"},"revisionNum":1,"uid":55877,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"subject":"Re: Staying Positive - new diagnosis","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:55877"},"parent":{"__ref":"ForumTopicMessage:message:55876"},"body":"Hi Tracey. Welcome to the forum. I'm sorry that you find yourself here but I hope you find it as warm and supportive as I have.
If you are considering a double mastectomy and reconstruction, you should join the Choosing Breast Reconstruction group. Scroll down and tap Groups. You could also check out Reclaim Your Curves.
I had a BMX and DIEP recon at the end of April this year. You can read and see my experience in the group. It is a massive thing to do. It is not easy. The recovery time is long, and there are many possible complications.
Because I had chemo I had a lot of thinking time, which I needed. I have no regrets, especially round the fact that I had two lots of DCIS discovered via post-operative histopathology, that were invisible on mammograms & ultrasounds. I've since discovered I have a CHEK2 gene mutation that pre-disposes me to breast cancer, and a bunchof other cancers. That further confirms my decision. You can tap on my @ name to read my story.
If there is not a cluster of people in your family with breast cancer my understanding is the chances of another cancer in your other breast is not more than the general population, or just a little. Make sure you talk it through with a counsellor who understands breast cancer. You know yourself best, how you can live with 'scanxiety', but please make sure you understand the ramifications of removing the delightful erogenous zone that are your chesticles! I have foobs, they fill out my clothes, but there is zero sensation there, and no nipples.
Good on you for checking out that dimple! Seriously, a lot of people ignore stuff like that. I had the blue dye injected into my nipple, oi... It took about three months to fade.
It is a whirlwind at the start, and the learning curve is vertical. I hope you're doing OK. Good luck with your test results and let us know how you get on. K xox","body@stringLength":"1967","rawBody":"Hi Tracey. Welcome to the forum. I'm sorry that you find yourself here but I hope you find it as warm and supportive as I have.
If you are considering a double mastectomy and reconstruction, you should join the Choosing Breast Reconstruction group. Scroll down and tap Groups. You could also check out Reclaim Your Curves.
I had a BMX and DIEP recon at the end of April this year. You can read and see my experience in the group. It is a massive thing to do. It is not easy. The recovery time is long, and there are many possible complications.
Because I had chemo I had a lot of thinking time, which I needed. I have no regrets, especially round the fact that I had two lots of DCIS discovered via post-operative histopathology, that were invisible on mammograms & ultrasounds. I've since discovered I have a CHEK2 gene mutation that pre-disposes me to breast cancer, and a bunchof other cancers. That further confirms my decision. You can tap on my @ name to read my story.
If there is not a cluster of people in your family with breast cancer my understanding is the chances of another cancer in your other breast is not more than the general population, or just a little. Make sure you talk it through with a counsellor who understands breast cancer. You know yourself best, how you can live with 'scanxiety', but please make sure you understand the ramifications of removing the delightful erogenous zone that are your chesticles! I have foobs, they fill out my clothes, but there is zero sensation there, and no nipples.
Good on you for checking out that dimple! Seriously, a lot of people ignore stuff like that. I had the blue dye injected into my nipple, oi... It took about three months to fade.
It is a whirlwind at the start, and the learning curve is vertical. I hope you're doing OK. Good luck with your test results and let us know how you get on. K xox","kudosSumWeight":2,"repliesCount":0,"postTime":"2018-11-23T01:51:04.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:55877_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[],"replies":{"__typename":"MessageConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"CachedAsset:theme:customTheme1-1744167669796":{"__typename":"CachedAsset","id":"theme:customTheme1-1744167669796","value":{"id":"customTheme1","animation":{"fast":"150ms","normal":"250ms","slow":"500ms","slowest":"750ms","function":"cubic-bezier(0.07, 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