Sore Joints
Hi I was diagnosed in August 2017 at 54 after having pain in my left breast occurring between mammograms. My TNBC tumour was stage 1 grade 3 1.7cm and removed, and then had a reexicision to clear ma...
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Terrific advice there for everyone, @TripleNegMama - thank you so much for that information - I will be copying this off & filing it for possible future use.
We ALL need to be SO proactive in approaching our own treatment - and our concerns need to be taken SERIOUSLY! They may just be 'aches & pains' to the professionals (particularly as you AREN'T on AIs) - but it is a massive worry to you that you have them!
At worst, it is our LIFE at threat here - and at best our quality of life. :(
@Jani1 .... It might be a good idea to Print this entire 'thread' off & take it with you to see your GP AND your Specialist .... highlight the areas that you want to query with them (especially Triplenegmama's bit) - and read it out to them (from those who are going thru it!)
Most GPs & specialists haven't 'been thru it' (they are only sprouting what others have told them, or what they've read in books when going thru uni!) so they have no real idea of the physical & emotional toll that this shitty disease does to us - let alone our fears of survival. It mucks with our brain as well as our body - so do what you have to do to get 'checked out' properly. And everybody's symptoms are unique to them - No two are the same.
If the cost of the PET scan is difficult for you to find - maybe ask the family to donate $$ instead of presents for your next Xmas or Birthday to - a far better present than a pair of socks or hand lotion! ;)
Once you have it - you have a 'picture of you' as of 'now' - so if you DO need another one years down the line - you have something to compare it to. Whilst it is not good to have a HEAP of scans/xrays etc ..... you do need to be armed with the best info for the boffins to understand just what IS going on with your body.
I hope you are able to get it done soon - for your own peace of mind & sanity!!
All the best, take care xxx
We ALL need to be SO proactive in approaching our own treatment - and our concerns need to be taken SERIOUSLY! They may just be 'aches & pains' to the professionals (particularly as you AREN'T on AIs) - but it is a massive worry to you that you have them!
At worst, it is our LIFE at threat here - and at best our quality of life. :(
@Jani1 .... It might be a good idea to Print this entire 'thread' off & take it with you to see your GP AND your Specialist .... highlight the areas that you want to query with them (especially Triplenegmama's bit) - and read it out to them (from those who are going thru it!)
Most GPs & specialists haven't 'been thru it' (they are only sprouting what others have told them, or what they've read in books when going thru uni!) so they have no real idea of the physical & emotional toll that this shitty disease does to us - let alone our fears of survival. It mucks with our brain as well as our body - so do what you have to do to get 'checked out' properly. And everybody's symptoms are unique to them - No two are the same.
If the cost of the PET scan is difficult for you to find - maybe ask the family to donate $$ instead of presents for your next Xmas or Birthday to - a far better present than a pair of socks or hand lotion! ;)
Once you have it - you have a 'picture of you' as of 'now' - so if you DO need another one years down the line - you have something to compare it to. Whilst it is not good to have a HEAP of scans/xrays etc ..... you do need to be armed with the best info for the boffins to understand just what IS going on with your body.
I hope you are able to get it done soon - for your own peace of mind & sanity!!
All the best, take care xxx