Yep I have cancer too. Great! Don't know how to use this website, I don't have time for this. I find myself sitting here. Been crying for a couple of hours now. I shouldn't be because they are so many more of you who are much worse. To put it simply, I have had the ugly bit removed and node biopsy. Wanting for the test results is doing by head in. I am so scared. I know that I am probably going to get through this. I am a very strong and positive person, but this has thrown me for a six. I'm not liking who I'm becoming. I'm an emotional wreck, I'm angry, snappy and tearful while being happy no sad and positive and not so positive. Am I going nuts?

@melony Not surprised to see a post at 5am - you'll often find someone up and on this site during the night. Getting that diagnosis is so hard and then the constant waiting to find out exactly what has hit you and what options you have to deal with it. And there are people on this forum who are at many places on the BC spectrum but we all know what it's like to suddenly have your life turned upside down by this. I felt completely well when I went along to my Breastscreen mammogram. Then life gave me an almighty kick and I've been travelling along this rollercoaster since December and a way to go yet. All I can say is to try to take one day at a time. This forum is wonderful for support, advice, information and a few laughs and the knowledge that people understand what you're going through.

Hello - you're feelings are normal even though you may not think so at this point. Normally @SoldierCrab, one of our valued contributors and moderators would give an intro - it's early so I have copied and pasted for you! Hope it helps as you get a grasp of the website and know that there's always someone not far from the forum to help out!"It is hard when we are first diagnosed... Below are a couple of links to help you find your way around the forum and also how to find a breast care nurse and how to order a MY journey Kit if you haven't got one yet. It can be a a whirlwind when we first get a diagnosed.... Breathe and take it one step at a time. The what and how thread. http://onlinenetwork.bcna.org.au/discussion/14879/the-what-and-how-thread/p1 Breast Care Nurses https://www.mcgrathfoundation.com.au/OurMission/OurNurses/FindANurse.aspx My Journey Kits and other resources. https://www.bcna.org.au/resources/ BCNA Helpline 1800 500 258 If you have any questions, concerns or require any further information or support please call 1800 500 258. The Helpline is open Monday, Wednesday and Friday from 9 am till 5 pm EST and Tuesday and Thursday from 9 am till 9 pm ESTAlso I will add this link from the BCNA website https://www.bcna.org.au/understanding-breast-cancer/types-of-breast-cancer/Take care

Hey @melony,Welcome. As you can already see the gorgeous ladies here are full of wisdom and warmth. We know that paralyzing fear and uncertainty at the beginning. I had the ugly bit removed, back for re excision to get clearer margins and full lymph node clearance with 5/24 with cancer in them. It does take a while for the sensation to come back. Makes shaving under your arms interesting at the start with no feeling. One of my biggest fears was coming out at the end of it a different person. I too am a fixer, chief renovator, patcher upper of poor old house and farm, head spider, frog and lizard re-locator and auto electrician lol. If you want something fixed...go to mum. If you are anything like I am this is how you will get through all this. I planned jobs and kept fixing stuff the whole way along to distract me from constant thoughts of treatment and helped keep my mind focused. Chemo scares the hell out of everyone at the start. The build up and fear of how your body will react is generally worse than when you actually get going. Seriously does your head in. Once you get your results you will feel a little more in control with a plan in place. It's ok to feel scared, it's ok to cry and scream. It's normal but it will get less and less. You'll get it done and come out the other side a stronger, more bad ass version of the wonderful person you already are.Lots of hugs, one foot after the other, one day at a timexoxoxox

Happy Happy Days. My tests results came in. Margins are clear. Nodes are clear. Has hormone receptors. So its good news for me. Well the best in this situation. Gonna need radium and hormone treatment now. Have to see oncologist for more details. So what I have worked out so far is that I will always have the cancer cloud over my head but today it isn't raining. All you girls are great. Thank you again.

@melony so sorry u have had to join us all here. We all go through through the terror and uncertainty when first diagnosed- I know I did. I found this forum to be great though - no such thing as a stupid question and all the women here are happy to share their own experiences. Big hugs xoxoxo

So Sad | BCNA Online Network

39 Replies

Romla
Member
8 years ago
Forgot one important thing about Radiotherapy- at the end I was engulfed with tiredness - be prepared to take things quietly.
Romla
Member
8 years ago
@melony good news ! I too had just Radiotherapy and hormone therapy.Radiotherapy was ok just a very busy time as you attend Monday to Friday every day and was a lot of travel and hassle looking for a park.The actual treatment each day is quite quick.

I had 16 rounds and thought I would have major skin problems as am very fair but it did not happen.You need to invest in a good cream which you use 3 times per day and more if you need it . I do not recommend Sorbolene. I used Calendula cream at the centre straight after each zap and it was excellent.I used Dermaveen at home as I had already purchased it .Many ladies on here are keen on MooGoo.I creamed up for about 3months.You need to be careful with UV on the radiated area I found as it seems to activate it.

I have been on hormone therapy - Letrozole/Femara which is an Aromatase Inhibitor for post menopausal women - for 9 months and am managing ok. Yes I get joint stiffness , occasional hot flushes and a tendency to the blues .I find a 1 hour daily walk helps a lot with my joints and my mood. The only really worrying aspect for me has been the spike in my cholesterol which was formerly good .Aromatase inhibitors thin bones which was also a worry for me as I started with osteoporosis and had an existing fracture so I have 6 monthly Prolia injections.

Hope some of the above helps.
Finch
Member
8 years ago
that's fantastic news to hear @melony , relax and enjoy the moment, take a break , celebrate. Xxx
I have to have radiation and hormone inhibitors too, but will probably start after you as I'm still just half way through my chemo.
I'm going with both gladly knowing so much research and money has been thrown at bc and this is considered the best course of action at the moment . The best for survival rate. I consider myself lucky to be at the benefit of all that's gone on before me through money and research thrown at bc. I hope I cope with it ok , I'll be researching rad once chemo is over as I'll do with the hormone inhibitors. I'll be asking lots of questions on this site from our lovely club members as to what to do to make it as easy on myself as possible and get the best possible outcome from my treatment. But first get this darned chemo out the way.
Take care xx
Kiwi_Angel
Member
8 years ago
This is the link for the one the professionals use as well. https://www.eviq.org.au/medical-oncology/breast
iserbrown
Member
8 years ago
BCNA have booklet on Hormone therapy. My breast care nurse gave it to me when I was in hospital

https://www.bcna.org.au/understanding-breast-cancer/treatment/hormone-therapy/

Pleased to hear your news all good!
melony
Member
8 years ago
Yeah K. I think that joining this site is the best thing so far cause no one really knows. I've spoken to all different cancer victims since being diagnosed but no one really knows like you lot. I get good news in one hand and bad in the other. So what do we do? I've been reading up on hormone treatment. Yes doc says is the best outcome. Oh yeah. Right! Who says? Has she read posts on this site? Give me a break. And OMG Radiation stories from various people in my community(so called friends) have actually scared the crap out of me. Then I think everyone is different. But today is still a good day. lol.
kmakm
Member
8 years ago
As these things go that is excellent news, so yay for now! Hang in there, cherish the small victories and howl at the moon if you need to. I saw my breast surgeon yesterday and came away reassured on one hand, but chastened on the other by the same realisation: breast cancer will always be with me. At least we have each other here for company. K xox
adean
Member
8 years ago
Hi this year in july it will be 6 years since l wrote my first post here.and lm still here 6 years later writing posts lol.l will be honest you have good days bad days and better days, and yes l became different good or bad l dont know but l like me haha yes l had the howling days and the bitch days and the fighter days.regards adean xx
Kiwi_Angel
Member
8 years ago
@melony - amazing news that u don’t need chemo as I know u were terrified of that. I don’t need radiation so can’t help u with that but many beautiful ladies here will be a wealth of advice about what to expect with that.
melony
Member
8 years ago
Happy Happy Days. My tests results came in. Margins are clear. Nodes are clear. Has hormone receptors. So its good news for me. Well the best in this situation. Gonna need radium and hormone treatment now. Have to see oncologist for more details. So what I have worked out so far is that I will always have the cancer cloud over my head but today it isn't raining. All you girls are great. Thank you again.

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So Sad

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