Single Masectomy

Hi @Leanne75, I have had a reconstruction, but did live with one breast for two years before that. The proper, weighted prosthesis will make a world of difference if it is fitted correctly. You honestly can’t tell the difference. I have heard of people putting a coin in the knitted one to keep it weighted. I also found the cheap ah type bra you get at Kmart with the molded inserts really comfy and very cheap. 
As others have already said, when and if you are ready, the choosing breast reconstruction group are all here to help with your queries. 
Good luck. 
Paula. 

Hi @Unicornkisses, thank you for your reply. I haven’t heard of the Lymphoedema pressure bra, I will have to look into that. I too am constantly thinking that my right breast is also at risk, as the mri scans also missed several DCIS which were found in my left breast following my breast conserving surgery. I just have to trust my team of specialist! XX 

Hi Leanne, you're definitely not alone on this journey. 
I had a single skin & nipple sparing mastectomy in May this year, I've finished chemo, almost finished radiation. I'm still using the soft breast form as it's comfortable & also as I don't have the funds to buy the prosthetic yet. I also wanted to wait until the swelling in my 'flat tyre' settles down after rads before I pay out so much money on a prosthetic as I want to make sure it's the right size straight up as I don't want to be lopsided LOL. 
Medicare and my health fund will refund most of it, but I still need to have it in the first instance. 

Hi Leanne75. I had a single mastectomy 4 weeks ago and have been wearing the Berlei Bra with the prosthetic which was included in my journey kit. Sometimes I wear a camisole with a shelf bra which is quite comfortable.  Sometimes I just wear a shirt with the cami, but stuff a tissue in the shirt pocket.  
Im going to get fitted for a proper prosthesis when I reach 6 weeks post surgery.
I'm planning on a reconstruction - hopefully sometime within the next 12 months.  I've found the 'choosing Breast reconstruction' group really helpful and informative. 
Hooe this helps. 
Jan :)

Hi @Leanne75 and welcome.
I too had breast conserving surgery first followed by chemo then single mastectomy and Lymphnode clearance, due to multi focal and multi centric cancer pathology after surgery, and then radiation.
I am still wearing my Berlei soft form but at the Beast Care nurses advice, I added some rice in the bottom of it to keep it down (I sewed a sausage shape holder out of polar fleece to hold the rice) , and removed some stuffing to make it the right size.
It does move a little in the soft Best and Less bras with the removable padding that I am using with it, but it is mostly very comfortable.
I just worry a bit though that the soft bra doesn't give my remaining side enough support, and am not sure if by wearing the soft form on one side is affecting my back at all as the weight is uneven.
I have yet to see my usual chiropractor to explore that issue.

I have a light weight prosthesis but have yet to find a bra that doesn't dig into the areas that I had the lymph nodes removed from, as they are still swollen after radiation.
I am seeing the lymphodema Occupational Therapist at my public hospital and they have suggested taping the areas, followed by a Lymphodema pressure bra. I am seeing them in two weeks to have that done and fitted.
The prosthesis itself is very comfortable to wear, which surprised me, it is just finding bras that are comfortable for me all day. The soft ones from Best and Less are not strong enough to hold the prosthesis up enough.

You can get self adhesive prosthesis that stick on your skin, they are a little more expensive and require special washing but allow you to wear normal bras, you might see if that suits you when the time comes.
I have adjusted to the look of the surgery side, but it does make some clothes sit lopsided if you don't wear a prosthesis of some sort, especially camisoles that I wear to bed, the shoulder strap on my remaining side keeps falling off. And I still go to cup the breast on the surgery side while washing in the shower, and get a slight jar of realisation when it isn't there, I guess that will wear off over time.

I am planning on reconstruction on my Plastic Surgeon's public list next year.
I will have DIEP flap reconstruction.
At present I am only considering a single breast reconstruction, but as I will only get one go at it, I am going to have another MRI before surgery to ensure that the remaining breast is cancer free.
Mammograms and multiple ultrasounds with multiple Doctors, after my diagnosis failed to identify the second 2.2cm lump in another quarter of my breast, and the DCIS near the main tumour, so I have no faith at all in mammograms or ultrasounds identifying cancer in my breasts.
My surgeon is certain that my left breast is clear - I also had an MRI before mastectomy and in the first surgery I had a bilateral reduction removing 150g of breast tissue from my remaining breast which was all clear of cancer in the pathology - and my Oncologist is sure that chemo and the Aromatase Inhibitors I am on should ensure that it is clear too.
But it is hard to take the risk.

There are challenges, aren't there?
I hope some of the tips people have given you here help you with your problems.

Thanks Melinda, I’m sure I will feel for comfortable and confident once I am wearing a prosthesis and the correct bra x

Hi @Leanne75 welcome!

There is a brilliant woman in Melbourne who specializes in bras for mastectomy and reconstruction. She used to be a Nurse and now does this, she is amazing and has all sorts of prosthesis from what I remember, her bra fittings are fantastic.

I had a single mastectomy in February but with immediate diep flap reconstruction, a year after treatment due to not wanting to risk a 3rd recurrence. So I waited to go and get fitted, now I feel so much better wearing proper bras. She does orders by skype even lol. 

Hugs Melinda xo

Hi Kath, that would probably help. My breast form needs a bit of weight for gravity to work on it! Thanks x

Hey @Leanne76...you could try a sock with grains in it to help with weight while you wait. (Can you remember bean bag frogs...or even a wheat bag...think of the weight)  I had heard of someone who did this as found the prosthesis too heavy. I guess you could put inside the breast form (with stuffing removed) to give you a little more weight and make it a bit more comfy until you are fitted. Just a thought. Kath x

Thank you so much ladies for your comments. I had my surgery 5 weeks ago, so I will make an appointment for a prosthesis in a couple of weeks. I try to buy button up shirts with pockets, I feel more confident wearing them. I think the prosthesis will make a huge difference. My right boob likes to head south/west lol, where as the form just sits straight! It has been a great comfort to hear what you are experiencing. There is absolutely no history of breast cancer in my family, and I don’t know of any friends or co-workers who have had breast cancer either. Thank goodness for networks like this one xx