Signet Ring Cell Carcinoma of the Breast
Does anyone know anything about, or been diagnosed with, Signet Cell Ring Carcinoma of the Breast? I was diagnosed a month ago with 2 primaries (mulifocal) and one is an 5mm IDC but the other is a 2...
Forum Discussion
Hi there @Eli86. So sorry that you’ve joined us but welcome to our crew. I’ve never heard of the type of bc you’ve been diagnosed with and you will be guided by your team in due course. At this stage just take a day at a time which I know is hard but once you have a plan of attack you will feel better. I had triple negative breast cancer in May 2016 left boob stage 2a grade 3 (3cm tumor) No lymph nodes involved all scans clear. 8 rounds of dose dense chemo (4 AC and 4 paclitaxol 2 weeks apart) It’s a less common bc too. I took the left boob off so I only had to have chemo and not radiation as well then took the right one off as a prophylaxis as my guts told me too.
Everyone is different and many bc surviviors keep a boob or both and lots do what I did, and lots have reconstruction and many don’t. It’s a very personal thing. But my advice is wait and see what the oncologist and your surgeon says then make your mind up from that. I will tell you this though. If you want a recon discuss this with your surgeon as some do immediate recon and some don’t. Also if you live in qld and need to use the public system for your surgery and don’t have immediate recon the wait times can be up to 5 years. I’m still waiting.
If you have private insurance make sure you find out your out of pockets as these can be expensive or find a surgeon who doesn’t charge above the AMA fees. You can also go intermediate for surgery if you get the right surgeon. But this is all here say for now until you get your plan of attack. Don’t overvthink it. Try not to google too much as there are updates all the time with treatment plans and some of the info you read might have changed or might not be up to date. The waiting is the worst but once you get a plan you will feel better. Then you can sort your life and family around it. How old are you love? Do you have any family history? You may qualify for the gene test too if you so ask your oncologist about it. I did as I was 43 when diagnosed and no family hsitory and had TNBC. I was negative. You might as you have a less common type too. This is doable love and we will all be here to hold your hand. Big hug. Margie x
Everyone is different and many bc surviviors keep a boob or both and lots do what I did, and lots have reconstruction and many don’t. It’s a very personal thing. But my advice is wait and see what the oncologist and your surgeon says then make your mind up from that. I will tell you this though. If you want a recon discuss this with your surgeon as some do immediate recon and some don’t. Also if you live in qld and need to use the public system for your surgery and don’t have immediate recon the wait times can be up to 5 years. I’m still waiting.
If you have private insurance make sure you find out your out of pockets as these can be expensive or find a surgeon who doesn’t charge above the AMA fees. You can also go intermediate for surgery if you get the right surgeon. But this is all here say for now until you get your plan of attack. Don’t overvthink it. Try not to google too much as there are updates all the time with treatment plans and some of the info you read might have changed or might not be up to date. The waiting is the worst but once you get a plan you will feel better. Then you can sort your life and family around it. How old are you love? Do you have any family history? You may qualify for the gene test too if you so ask your oncologist about it. I did as I was 43 when diagnosed and no family hsitory and had TNBC. I was negative. You might as you have a less common type too. This is doable love and we will all be here to hold your hand. Big hug. Margie x