Setting In
The reality is hitting tonight. I was diagnosed with ILC on 23 November and it's just been surreal. I've been going through the motions. Hasn't felt real until now. Had an appointment with surgeon ...
Forum Discussion
So sorry to see you join the club that no-one wants to join @Yellow_Daffodil .... the first weeks are always a total blur - and full of fear, even anger & the 'what ifs'. ILC is considered the 'sneaky one' of all the BCs, as it has those 'fingers' that can spread out a bit .... it doesn't always show as a 'lump' as such, so is often difficult to find (or even see) with a regular mammogram.
Where abouts are you? We may have members in your area who can point you to specific services available to you. You can add it by clicking onto your "Profile" and editing it - adding your 'town or city'.
As @FLClover says - they won't know until they get it out, to see if it is bigger than they thought and only the pathology will show the clearance margins ..... Surgeons don't normally do a mastectomy unless they have to ... mine was ILC (under the nipple) and I had a lumpectomy. I didn't have chemo but did have radiation & now on hormone tablets.
The Yanks have a dedicated Lobular web site that you may like to look at and I am on a Facebook ILC group too. (https://lobularbreastcancer.org/ (An American website is the main organisation that is especially dedicated to invasive lobular cancer.)
take care,take deep breaths and take one day at a time. Try and keep busy between the ‘waits’ doing things you love. It mucks with your brain as much as your body xxx
ask any questions you think of .... there are no silly questions. Xx
Where abouts are you? We may have members in your area who can point you to specific services available to you. You can add it by clicking onto your "Profile" and editing it - adding your 'town or city'.
As @FLClover says - they won't know until they get it out, to see if it is bigger than they thought and only the pathology will show the clearance margins ..... Surgeons don't normally do a mastectomy unless they have to ... mine was ILC (under the nipple) and I had a lumpectomy. I didn't have chemo but did have radiation & now on hormone tablets.
The Yanks have a dedicated Lobular web site that you may like to look at and I am on a Facebook ILC group too. (https://lobularbreastcancer.org/ (An American website is the main organisation that is especially dedicated to invasive lobular cancer.)
take care,take deep breaths and take one day at a time. Try and keep busy between the ‘waits’ doing things you love. It mucks with your brain as much as your body xxx
ask any questions you think of .... there are no silly questions. Xx