Scared and confused
Hi my name is Helen. I was recently diagnosed with a Grade 2 lobular cancer on my left breast. Sentinel node biopsy confirmed 1 node was involved and tumour size was 12.7cms at time of surgery. So di...
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Hi @Heles I was diagnosed 20/2/17 with lobular breast cancer grade 2 LHS - my tumour was 1.4 cm deep down on my breast bone. My tumour was detected by mammogram by a very experienced mammographer who I gather I was lucky to have as I was told not everyone would have picked it up.I had a lumpectomy and sentinel node biopsy with 2nodes removed. The pathology report revealed microstasis in 1 node plus margins not clear so I had a reexcision 10 days later with clear margins.Due to the microstasis I had 16 rounds of radiotherapy - as LHS learnt a breathing technique to lift the breast away from the heart to avoid damage to my heart.Radiotherapy was a very busy time - daily zaps meant constant travel which was tiring although skin damage was minimal I think due to less zaps and a good creaming product - I used Dermaveen at home and Calendula cream at the centre supplied by the Radiotherapy centre.Many on here swear by Moo Goo.I did not like Sorbolene and noted many patients didn’t either as only Calendula seemed to always run out - the centre no longer uses Sorbolene and has switched to Cetaphil.
I am er+ and have hormone therapy - Letrozole - for 5 years - which I have been taking for 8 months and seem to be managing ok - yes I have side effects hot flushes , joint pain etc.
I have learnt the most important things to coping physically/ mentally/ emotionally for me is to walk daily for an hour plus to share with others in the same boat.I have learnt there are many of us in this boat and that life is not over but it is now different .
There is much wisdom and support available on this blog for you.I am willing to help with any knowledge I have gained.
For me active treatment left little time to think and medical/ non medical staff involved in this process cocooned me with such kindness that I was not really afraid.The hard bit for me was when active treatment ended and I felt lost .I am so glad you found this site early as it is wonderful as are it’s participants.Please ask whatever you need to know and we will all try to help .You are no longer alone we are all here in your corner. XO
I am er+ and have hormone therapy - Letrozole - for 5 years - which I have been taking for 8 months and seem to be managing ok - yes I have side effects hot flushes , joint pain etc.
I have learnt the most important things to coping physically/ mentally/ emotionally for me is to walk daily for an hour plus to share with others in the same boat.I have learnt there are many of us in this boat and that life is not over but it is now different .
There is much wisdom and support available on this blog for you.I am willing to help with any knowledge I have gained.
For me active treatment left little time to think and medical/ non medical staff involved in this process cocooned me with such kindness that I was not really afraid.The hard bit for me was when active treatment ended and I felt lost .I am so glad you found this site early as it is wonderful as are it’s participants.Please ask whatever you need to know and we will all try to help .You are no longer alone we are all here in your corner. XO