Hi @heles. I was diagnosed on 5 December with ILC from a routine screening mammogram. I had no idea. Very hard to see on the scan, too so I was lucky it was picked up. It was supposed to be 2.5cm. Had a partial and sentinel node biopsy just before Christmas. It came back as 4.5cm without clear margins and 3 nodes involved. Grade 2, OR+ ER+ HER- , slow-growing. Went back in for single mastectomy and axillary dissection on 8 January. CT scans clear but the cancer was almost invisible on those scans as well. My surgeon is sure that the cancer is gone but there's always the chance of floaters. I'm now having chemo - 4 doses of AC x 3 weekly which I'm halfway through, then 12 weekly doses of Paclytaxel. Then I will have 15 days of radiotherapy. Probably followed by some sort of hormone therapy. I'm 54. As Zoffiel says - ILC is a mongrel of a thing. I am just thankful that my screening mammographer was so eagle-eyed.
Chemo is not fun (understatement) and maybe I don't really need it but I don't want to find out in a few years that I should have had it, so that's what I'm doing.
BC diagnosis is a shock (another understatement) and sends you reeling. This site has been a lifesaver as far as helping me to cope with the diagnosis and treatment and being able to ask for information from those who have/are going through it. Ask your questions, vent your rage, reach out for understanding, enjoy the laughs.