The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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febrile neutropenia ... round two","id":"message:22082","revisionNum":1,"repliesCount":12,"author":{"__ref":"User:user:19982"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"conversation":{"__ref":"Conversation:conversation:22082"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:22082"},"body@stripHtml({\"truncateLength\":200})":"I had to go into hospital after I developed a high temp (39.9) after chemo 3 .... right at the end of the 3 week cycle. I was on FEC for the first 3 chemos and until then had felt really on top of thi...","body@stringLength":"2916","rawBody":"I had to go into hospital after I developed a high temp (39.9) after chemo 3 .... right at the end of the 3 week cycle. I was on FEC for the first 3 chemos and until then had felt really on top of things after my steroid dose was reduced to just 8mg with the subsequent 2 chemos. The steroids give me agitated depression .... which I have a history of. After 7 days in hospital I was discharged...no bacteria or virus apparent. After chemo 4 I started on a new round of three treatments (my last ones). Docetaxil sp? and Herceptin. I was only okay for a week and had to go back to hospital with a temp of 39.1 for 6 days. Neutropenia again, though this time they heard a crackle in my lungs and was diagnosed with pneumonia, even tho chest xrays were okay. 24 hours after chemo 4 I self injected the med that is supposed to help prevent you from developing neutropenia. I experienced bad leg/knee pain but this could also be the Docetaxil. The Drs said without the injection I would have been worse. On chemo 3 after being in hospital I was diagnosed with deep vein thrombosis in my left calf and a pulmonary embolism in my right lung. Then came chemo 4 and the pneumonia, which honestly I hardly felt. I had been complaining about leg cramps and chest pain and a cough since commencing chemo ... for 9 weeks but it was ascribed to the chemo. It wasn't till hospitalisation at a different closer hospital that they found the blood clots. So please make a louder noise than I did about side effects. As a result I have to inject my tummy with Fragmen, an anticoagulant for the next 6 months. I will inject my herceptin into my leg as my veins are sick of coping. I guess I am now in a place where I went from being on a high, eating well, exercising, meditating ... to feeling scared of my next two chemos. Only two to go but what if???? The chemo seems to be slowly breaking me down, if not physically then psychologically. My first stay in hospital was okay and novel but exhausting. My family didn't visit as scared of catching something. Same as second stay where I found myself just wanting to go home. Pastoral care and the social workers were good. Now I have read that radiation can also cause neutropenia ... I have if after a 4 week break after chemo 6. For 3-6 weeks. I am also in constant pain under my left arm pit from the total axillary clearance scar. The Dr prescribed a small dose of Lyrica for neuropathy. So I am wondering how everyone copes with these set backs and any ideas you may have...in a bit of a hole after feeling really well. I just hate the thought of going into hospital again despite it being very comfy...I am so tired and just can't see the finish line if radiation is going to cause neutropenia too. Sorry to be 'poor me' when I know a lot of people are struggling. xxx","kudosSumWeight":0,"postTime":"2017-10-29T06:55:46.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":3,"currentRevision":{"__ref":"Revision:revision:22082_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":181},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"customFields":[],"body":"I had to go into hospital after I developed a high temp (39.9) after chemo 3 .... right at the end of the 3 week cycle. I was on FEC for the first 3 chemos and until then had felt really on top of things after my steroid dose was reduced to just 8mg with the subsequent 2 chemos. The steroids give me agitated depression .... which I have a history of. After 7 days in hospital I was discharged...no bacteria or virus apparent. After chemo 4 I started on a new round of three treatments (my last ones). Docetaxil sp? and Herceptin. I was only okay for a week and had to go back to hospital with a temp of 39.1 for 6 days. Neutropenia again, though this time they heard a crackle in my lungs and was diagnosed with pneumonia, even tho chest xrays were okay. 24 hours after chemo 4 I self injected the med that is supposed to help prevent you from developing neutropenia. I experienced bad leg/knee pain but this could also be the Docetaxil. The Drs said without the injection I would have been worse. On chemo 3 after being in hospital I was diagnosed with deep vein thrombosis in my left calf and a pulmonary embolism in my right lung. Then came chemo 4 and the pneumonia, which honestly I hardly felt. I had been complaining about leg cramps and chest pain and a cough since commencing chemo ... for 9 weeks but it was ascribed to the chemo. It wasn't till hospitalisation at a different closer hospital that they found the blood clots. So please make a louder noise than I did about side effects. As a result I have to inject my tummy with Fragmen, an anticoagulant for the next 6 months. I will inject my herceptin into my leg as my veins are sick of coping. I guess I am now in a place where I went from being on a high, eating well, exercising, meditating ... to feeling scared of my next two chemos. Only two to go but what if???? The chemo seems to be slowly breaking me down, if not physically then psychologically. My first stay in hospital was okay and novel but exhausting. My family didn't visit as scared of catching something. Same as second stay where I found myself just wanting to go home. Pastoral care and the social workers were good. Now I have read that radiation can also cause neutropenia ... I have if after a 4 week break after chemo 6. For 3-6 weeks. I am also in constant pain under my left arm pit from the total axillary clearance scar. The Dr prescribed a small dose of Lyrica for neuropathy. So I am wondering how everyone copes with these set backs and any ideas you may have...in a bit of a hole after feeling really well. I just hate the thought of going into hospital again despite it being very comfy...I am so tired and just can't see the finish line if radiation is going to cause neutropenia too. Sorry to be 'poor me' when I know a lot of people are struggling. xxx"},"Conversation:conversation:22082":{"__typename":"Conversation","id":"conversation:22082","solved":false,"topic":{"__ref":"ForumTopicMessage:message:22082"},"lastPostingActivityTime":"2017-11-01T19:31:15.000-07:00","lastPostTime":"2017-11-01T19:31:15.000-07:00","unreadReplyCount":12,"isSubscribed":false},"ModerationData:moderation_data:22082":{"__typename":"ModerationData","id":"moderation_data:22082","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:22082_1":{"__typename":"Revision","id":"revision:22082_1","lastEditTime":"2017-10-29T06:55:46.000-07:00"},"ForumReplyMessage:message:22086":{"__typename":"ForumReplyMessage","id":"message:22086","conversation":{"__ref":"Conversation:conversation:22082"},"author":{"__ref":"User:user:19982"},"revisionNum":1,"uid":22086,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"subject":"Re: Re febrile neutropenia ... round two","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:22086"},"parent":{"__ref":"ForumTopicMessage:message:22082"},"body":"Thank you for writing back ladies. You have all certainly done it tough. 56 days @AllyJay! I am so glad you beat it. @SOL I will look up that person and try some juicing as tongue and throat are still burning. @Zoffiel a great idea ... I keep forgetting I can say NO. One free week with no dr appointments would be great. I do wish I had a partner to assist. Am living in a studio flat above my dad's house with other relatives residing. Dad is lovely but I do need to sort everything out for myself. I made an appoint. with my psych today as realising how much living in a pretty toxic environment weighs on me besides the treatments. This is not really the forum for this but to give an idea, I was away three weeks, one in hospital and two with a friend post chemo. I came home to find all our family photos of my deceased mum and grandparents had disappeared. My sister and I were to go through things together and share items dad didn't want as we are supposed to be downsizing (for pasf 8 years!). This was really upsetting and I tried to establish communication cordially by text as we don't speak but nothing came of it. Now I am scared of being hospitalised again an coming home to find the china packed up! These are just sentimental items but we originally decided nothing would be packed without consultation. I couldn't believe it. Do you think that in the end it is healthier to let go and just remember my darling relatives who I was close to...or argue the toss because they are items they loved? I think I am feeling attached to these pictures and items as they are the closest link I have to being loved back then. Now I have my dad who doesn't like any confrontation and a sister who told me the chemo and rad would kill me anyway when I told her of my diagnosis...and said she would not be able to support me in any way. I don't need support from her, but saying hello in the morning would be nice. Some ppl say family members react with anger sometimes and this may be the case here, but it is anger about slowing down the selling process and moving to the country that is the issue seeing as my treatment has delayed things. Letting go of everything is starting to feel the only way out of fighting fr my health and worrying where the bloody good dinner service is! Is it possible to do? xxx ","body@stringLength":"2367","rawBody":"Thank you for writing back ladies. You have all certainly done it tough. 56 days @AllyJay! I am so glad you beat it. @SOL I will look up that person and try some juicing as tongue and throat are still burning. @Zoffiel a great idea ... I keep forgetting I can say NO. One free week with no dr appointments would be great. I do wish I had a partner to assist. Am living in a studio flat above my dad's house with other relatives residing. Dad is lovely but I do need to sort everything out for myself. I made an appoint. with my psych today as realising how much living in a pretty toxic environment weighs on me besides the treatments. This is not really the forum for this but to give an idea, I was away three weeks, one in hospital and two with a friend post chemo. I came home to find all our family photos of my deceased mum and grandparents had disappeared. My sister and I were to go through things together and share items dad didn't want as we are supposed to be downsizing (for pasf 8 years!). This was really upsetting and I tried to establish communication cordially by text as we don't speak but nothing came of it. Now I am scared of being hospitalised again an coming home to find the china packed up! These are just sentimental items but we originally decided nothing would be packed without consultation. I couldn't believe it. Do you think that in the end it is healthier to let go and just remember my darling relatives who I was close to...or argue the toss because they are items they loved? I think I am feeling attached to these pictures and items as they are the closest link I have to being loved back then. Now I have my dad who doesn't like any confrontation and a sister who told me the chemo and rad would kill me anyway when I told her of my diagnosis...and said she would not be able to support me in any way. I don't need support from her, but saying hello in the morning would be nice. Some ppl say family members react with anger sometimes and this may be the case here, but it is anger about slowing down the selling process and moving to the country that is the issue seeing as my treatment has delayed things. Letting go of everything is starting to feel the only way out of fighting fr my health and worrying where the bloody good dinner service is! Is it possible to do? xxx 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Positive HER2+","conversation":{"__ref":"Conversation:conversation:262791"},"id":"message:262791","revisionNum":2,"uid":262791,"depth":0,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"author":{"__ref":"User:user:2606"},"metrics":{"__typename":"MessageMetrics","views":130},"postTime":"2025-04-01T16:18:36.409-07:00","lastPublishTime":"2025-04-01T16:32:19.065-07:00","body@stripHtml({\"removeProcessingText\":true,\"removeSpoilerMarkup\":true,\"removeTocMarkup\":true,\"truncateLength\":200})":" Hi everyone BCNA Online Network established a Group with Triple Positive breast cancer which is useful also for people who might be HER2+ but not positive for oestrogen or progesterone. 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Umm I came to Melbourne last week from interstate for breast lump testing. It’s confirmed cancer and I am awaiting staging, this week. 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I live in Bundaberg and can not fault the system from...","body@stripHtml({\"removeProcessingText\":true,\"removeSpoilerMarkup\":true,\"removeTocMarkup\":true,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":1,"repliesCount":4,"readOnly":false,"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","node":{"__typename":"Tag","id":"tag:lymph nodes","text":"lymph nodes","time":"2025-03-30T05:25:42.461-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","node":{"__typename":"Tag","id":"tag:treatment decisions","text":"treatment decisions","time":"2025-03-30T05:26:07.300-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":1,"images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"videos":{"__typename":"VideoConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"Conversation:conversation:80153":{"__typename":"Conversation","id":"conversation:80153","topic":{"__typename":"ForumTopicMessage","uid":80153},"lastPostingActivityTime":"2025-03-18T15:11:01.000-07:00","solved":false},"User:user:5763":{"__typename":"User","uid":5763,"login":"Vera1975","registrationData":{"__typename":"RegistrationData","status":null},"deleted":false,"id":"user:5763"},"ForumTopicMessage:message:80153":{"__typename":"ForumTopicMessage","subject":"Newly Diagnosed with an early stage right breast cancer. 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