Rare breast cancer - Metaplastic
I just wanted to see if anyone has been diagnosed with a rare breast cancer type called Metaplastic subtype spindle cell (triple negative ) . Diagnosed August 2021 finished treatment in April 2022 , ...
Forum Discussion
cd85, I just finished 6 weeks ago with 6 months chemo after total lymph nodes surgery , which was diagnosed as triple negative, however I also have mets which I have been living with for the last 4 years.
My onco has decided to just monitor every 3 months as I have have lesions on hip bone and a small one in the lung.
So the first time 2018 I had , 6 months chemo, bilateral mastectomy,partial Lymph nodes removed, radiation, Xgeva and Tamoxifen for 3 years, then went onto Femara , had just made it to my first 6 month ( 2022)check up when the triple negative showed up in my remaining lymph nodes ( very quick growing and aggressive in six weeks went from 4 cm to 9 cm) and the lung lesion ( at the beginning unknown whether triple negative or mets ) , can't have radiation again on the lung as it's in the same area I had it for the Mets breast cancer.so we are just going to continue with the Femara and Xgeva.
Second time around of chemo has really done a number on me, but taking it one day at the time, as second chemo was a different cocktail of drugs which will affect only the triple negative cancer.
Your oncologist will talk it over with you , I'm not going to lie and say it was easy to go thru chemo again , but if it buys me another 3 -5 years its worth the effort.
My onco has requested 3 monthly scans , you can talk to your one about it too.
Good luck
My onco has decided to just monitor every 3 months as I have have lesions on hip bone and a small one in the lung.
So the first time 2018 I had , 6 months chemo, bilateral mastectomy,partial Lymph nodes removed, radiation, Xgeva and Tamoxifen for 3 years, then went onto Femara , had just made it to my first 6 month ( 2022)check up when the triple negative showed up in my remaining lymph nodes ( very quick growing and aggressive in six weeks went from 4 cm to 9 cm) and the lung lesion ( at the beginning unknown whether triple negative or mets ) , can't have radiation again on the lung as it's in the same area I had it for the Mets breast cancer.so we are just going to continue with the Femara and Xgeva.
Second time around of chemo has really done a number on me, but taking it one day at the time, as second chemo was a different cocktail of drugs which will affect only the triple negative cancer.
Your oncologist will talk it over with you , I'm not going to lie and say it was easy to go thru chemo again , but if it buys me another 3 -5 years its worth the effort.
My onco has requested 3 monthly scans , you can talk to your one about it too.
Good luck