Firstly I wish to thank everyone for your very kind replies. Although I was not able to respond at the time, they were very comforting to me and just what I needed at the time so thank you.
@kmakm, I'm doing ok. I'm back in hospital so your timing is perfect!
I had 1 of 3 node positive so has an axillary clearance done yesterday.
I did not get the pain properly controlled so let the anaesthetist know. He use more morphine which still didn't cut it so I ended up with a fentanyl PCA yesterday. It controlled the pain but made me feel horribly sedated, meant I needed to stay on oxygen, have calf compressors and IVT, which meant I was off to the bathroom every 5 minutes overnight. Oh and some vomiting, So I was thoroughly fed up with it by this morning and decided I preferred the pain!
They have given me palexia which is working a treat now, no pain and feeling well.
I had a good talk with my partner the other night. I have been trying to protect him through all of this and realise that he can't support me if I'm not letting him know how this is affecting me. He was blissfully unaware of my fears going to see the Oncologist this week as I knew I would get my staging results (all clear).
So I start chemo on the 8th April followed by 6.5 weeks of whole breast and supra clavicular radiotherapy.
I have long hair half way down my back, so I'm planning on getting a pixie cut next week, and thinking about donating my hair.
In terms of supports my family is all in NZ. I only told my mum last week. She is going down the lets be positive about this, which is good but I feel like I can't really confide in her when I have my down moments. My best friend is going through her own stuff at the moment. Which is why I came here when I felt like I really wasn't coping. And I really appreciate the support.
@arpie yes I have the pillow it is great, my daughter calls it my handbag :) I am in Adelaide.
@SoldierCrab Thank you for your lovely reply. I think you were right about DP avoiding hospital to pretend that this is not happening. He is sucking that up and coming in now, he really is a wonderful man.