Next phase ... Chemo on Monday
Hi, After the lumpectomy and sentinel node biopsy op, then next op of total axillary clearance of my right arm, I am now up to chemo. It starts on Monday. I am HER2 positive, grade 3, so will be havi...
Forum Discussion
Hi Ladies,
Sorry for the delay but if I'm not on here it usually means I'm in the foetal position trying to 'flight' vs 'fight'. The actual first infusion was okay. After I took the steroid tablets I had a reaction about 5 mins later ... heart fluttering, joint and back pain, low temp (35.1) then warm but not high. Immediate stomach ache and headache. Heartburn. After 2 hours this subsided. Got a repeat of heartburn at 3am. Drank heaps of water as instructed. Next morning had a repeat of same symptoms and again lasted 2 hours. Kept fluids up and met a friend for a two hour coffee. Thought I was doing great! Sadly although the heart prob stopped (I rang onco and she said come in if continuing) I continued downwards into joint and back pain, cool and warm but never "normal" and agitated depression which I haven't experienced to this extent since 26. Now 52 my meds are controlled and although I get bouts of anxiety, not to this extent. So it seems after talking to my breast physio today that I really need my meds to work in sync with the chemo. I see the onc on Thursday so this will be my main agenda. After lying in bed from Wed to Monday I was pretty over it. I know that's ridiculous given people's personal situations, but I was seriously questioning if I could cope. My physio, bless her, said a few days down is 'normal' but this is obviously to do with my depression and anxiety. If we can handle this, then the chemo should smooth out. If I take some prescribed diazepam 10mg, from my psych and an anti nausea pill, the metoclopramide, 10mg I find I can eat and do some small tasks like shower and wash up. I also found I was having a great deal of pain under armpit where lymph nodes removed. Obviously, I don't want to abuse the benzos as I know they are addictive. However, I want to get through this. I can't be pacing the floor at 3am till 7am looking for a way out. Pity you can't go into an induced coma and come out the other side! I wonder if anyone else has issues with clinically diagnosed depression and anxiety prior to treatment? Tips are welcome! This week it looks like my issues will be sorting constipation with diet, metamucil caps and coloxyl...finding a balance that doesn't bring back IBS. Also taking multiflora, plus Vits ADEK and 300mg turmeric. Gargling 3x daily as sore spots arise in mouth. Diffusing essential oils after hospital trips and fighting a throat that is not sure if sore or not! I haven't felt nauseaus, touch wood, but took the anti nausea med in case it helped with heartburn and stomach pain. The heartburn is pretty regular. I got mylanta but physio said to check with onc in case they have something better. Unfortunately my initial onc is rotating so I will see a new one on Thurs and go through story again. Thank God for my breast physio who I check in with...she knows all the right questions! Heart scan was today .... woke at 3 am and was at hospital till 3pm. Frequent flyer miles clocking up! Thank you for listening and if you want to slap me for having a day 7 sookaroo, please do! I feel a fool with this damned anxiety which seems to have no clear reason for existing and has been absolutely crippling for no good reason - or tangible reason that years of therapy can divulge. Did do some mindful meditation at Solaris Centre and it was great. Looking forward to restorative yoga later on and being in the present...not my head! Love to all you stars xxx
Sorry for the delay but if I'm not on here it usually means I'm in the foetal position trying to 'flight' vs 'fight'. The actual first infusion was okay. After I took the steroid tablets I had a reaction about 5 mins later ... heart fluttering, joint and back pain, low temp (35.1) then warm but not high. Immediate stomach ache and headache. Heartburn. After 2 hours this subsided. Got a repeat of heartburn at 3am. Drank heaps of water as instructed. Next morning had a repeat of same symptoms and again lasted 2 hours. Kept fluids up and met a friend for a two hour coffee. Thought I was doing great! Sadly although the heart prob stopped (I rang onco and she said come in if continuing) I continued downwards into joint and back pain, cool and warm but never "normal" and agitated depression which I haven't experienced to this extent since 26. Now 52 my meds are controlled and although I get bouts of anxiety, not to this extent. So it seems after talking to my breast physio today that I really need my meds to work in sync with the chemo. I see the onc on Thursday so this will be my main agenda. After lying in bed from Wed to Monday I was pretty over it. I know that's ridiculous given people's personal situations, but I was seriously questioning if I could cope. My physio, bless her, said a few days down is 'normal' but this is obviously to do with my depression and anxiety. If we can handle this, then the chemo should smooth out. If I take some prescribed diazepam 10mg, from my psych and an anti nausea pill, the metoclopramide, 10mg I find I can eat and do some small tasks like shower and wash up. I also found I was having a great deal of pain under armpit where lymph nodes removed. Obviously, I don't want to abuse the benzos as I know they are addictive. However, I want to get through this. I can't be pacing the floor at 3am till 7am looking for a way out. Pity you can't go into an induced coma and come out the other side! I wonder if anyone else has issues with clinically diagnosed depression and anxiety prior to treatment? Tips are welcome! This week it looks like my issues will be sorting constipation with diet, metamucil caps and coloxyl...finding a balance that doesn't bring back IBS. Also taking multiflora, plus Vits ADEK and 300mg turmeric. Gargling 3x daily as sore spots arise in mouth. Diffusing essential oils after hospital trips and fighting a throat that is not sure if sore or not! I haven't felt nauseaus, touch wood, but took the anti nausea med in case it helped with heartburn and stomach pain. The heartburn is pretty regular. I got mylanta but physio said to check with onc in case they have something better. Unfortunately my initial onc is rotating so I will see a new one on Thurs and go through story again. Thank God for my breast physio who I check in with...she knows all the right questions! Heart scan was today .... woke at 3 am and was at hospital till 3pm. Frequent flyer miles clocking up! Thank you for listening and if you want to slap me for having a day 7 sookaroo, please do! I feel a fool with this damned anxiety which seems to have no clear reason for existing and has been absolutely crippling for no good reason - or tangible reason that years of therapy can divulge. Did do some mindful meditation at Solaris Centre and it was great. Looking forward to restorative yoga later on and being in the present...not my head! Love to all you stars xxx