Hi SLD
I'm happy to share any part of my experience that can help. In my case I had a 40mm invasive lump on the left breast and 4 DCIS varying from 6m to 12mm in the right. Because my biopsy initially came back benign, but my surgeon (and everyone else) was unconvinced, I had a lumpectomy on both sides to determine for sure what we were dealing with. To say I was floored when the results came back cancer would be an understatement.
This did mean of course that by now all the lumps were out, two things influenced my choice. I had a new GP and he strongly advised double mastectomy even before the pathology came back, on the basis that "a lot was going on" for someone my age. I was 44 at the time. His quote was, "if you were a man, they wouldn't ask". the other thing for me, was my feeling that I seemed to have a particular aptitude for growing multiple lumps. My youngest was also 4 at the time, and for me I didn't want to be back year after year for the next lumpectomy and the next. My decision was probably a little easier in that I never had a strong sense of being defined by my breasts and I have opted to not have a reconstruction, nor to I wear a prosthetic. I think the Americans call it living flat.
Was it an easy surgery... For me, no, have I recovered quite quickly yes. I still have some slight restricted movement in my left arm but I know that's because I had to have a full node sweep and radiotherapy on that side. The right side has recovered much quicker and easier.
Our eldest had just turned 10 two weeks before I found the lump initially. we did end up telling him pretty early on as he sensed something was up. Being armed with some facts around survival rates really helps, and being early stage you will hopefully have a really good outcome regardless which choice you go with. Kids are amazingly resilient. Post my surgery I could only laugh as I did various phsyio exercises with my 4 y old beside me making appropriate grunts and groans while imitating my stretches. :smile:
I did question my decision a million times during the recovery, but now I am happy with my choice.
My surgery was on Aug 25th and I was back on the footy field by the end of Jan for the start of that season (AFL 9's btw - not up for contact sport at my age!!)
happy to chat more over the weekend if there's anything in particular you want to know.