Forum Discussion
Rhubarb21
1 year agoMember
Newly diagnosed metastatic cancer
Hi, I only just got my breast cancer diagnosis 1.5weeks ago and initially it was tentatively said to be Stage 3 due to being grapefruit sized and lymph node involvement. Then a couple of days ago afte...
Cath62
1 year agoMember
Hi @Rhubarb21, I have that same pathology and I have mets to my spine and liver. I fractured my spine in January 2023 so that was the start of my mets. My original bc was in 2020 and I had surgery, chemo, radium and hormone blockers at that time.
I am.older than you but fit and active. It is very scary when you find out you have mets. I found the first 6 months absolutely terrifying but there is hope for sure.
I am currently on Fulvestrant injections every 28 days and I take Ribociclib tablets too. I get scans every 3 months. I had radium on my spine and that spot is not active now. My mets are also in my liver too.
What I have learnt is there is hope. There are many treatments available to prolong life and keep you healthy too. I still travel around in Australia and i am active most days. I do get fatigue. Trust your oncologist as they are amazing and so knowledgeable.
Take all the help you can get. I hope you have supportive family and friends. See a psychologist if you need to. I did and it helped. It takes a good 6 months to process this and realise your not dying and there is a long way to go. New treatments are coming and never give up. Feel free to reach out via the private message if you want to and join our mets group. There are some amazing ladies in the group and we really get it!
Breathe deeply, treat yourself and surround yourself with your favourite people ✨️. Best wishes to you.
I am.older than you but fit and active. It is very scary when you find out you have mets. I found the first 6 months absolutely terrifying but there is hope for sure.
I am currently on Fulvestrant injections every 28 days and I take Ribociclib tablets too. I get scans every 3 months. I had radium on my spine and that spot is not active now. My mets are also in my liver too.
What I have learnt is there is hope. There are many treatments available to prolong life and keep you healthy too. I still travel around in Australia and i am active most days. I do get fatigue. Trust your oncologist as they are amazing and so knowledgeable.
Take all the help you can get. I hope you have supportive family and friends. See a psychologist if you need to. I did and it helped. It takes a good 6 months to process this and realise your not dying and there is a long way to go. New treatments are coming and never give up. Feel free to reach out via the private message if you want to and join our mets group. There are some amazing ladies in the group and we really get it!
Breathe deeply, treat yourself and surround yourself with your favourite people ✨️. Best wishes to you.