Hi @Dee8855
Yes, there is a lot of 'waiting' and great patience is required xx I am sure they'll have dealt with similar cases as yours xx. Make sure you STAY AWAY from Dr Google - there is a lot of 'old stuff' that comes up first - and is out of date & not relevant to your own diagnosis - and it can scare the pants off you! So better not to go there. Just rely on your Medical Team (and/or Breast Care Nurse) for quality information xx
Oh FANTASTIC!!! We have some wonderful patchworking & quilting ladies here - and we'd love to check out YOUR stuff xxx. I can't knit, sew, crochet or quilt to save my life ..... but if you want to know anything about fishing estuaries, I'm the one!! ;) That is one of my passions! :)
Whilst you are waiting for appointments & your next treatments, just try & keep yourself really busy, doing things you love! I found the radiation to be relatively 'easy' but as yours is on the left, you may need to do some 'breathing techniques' that they will take you thru, so don't worry about it. xx. Your Rads team will advise you on what lotions & potions to use during the treatment .... ask them about the possible use of Mepitel (it is a film that protects your skin from the rays.)
Being in the central coast, did you have to do much travel for your surgery? I am up in the Mid North Coast area & had my surgery in Sydney .... if you have to do any trips of 100k+, you can claim fuel & accommodation costs from IPTAAS. It also covers if you have to do 200k+ in one week, doing multiple trips! You have 12 months from the date of the trip, to claim.
Check out the NSW info here:
https://www.ruralhealth.org.au/sites/default/files/publications/pats-fact-sheet-and-guide-2023.pdfWe have some lovely members in the Central Coast, too ... so maybe you'll be able to hook up with them for a coffee & a chat when you are ready to. xx
take care & all the best xx
