Forum Discussion
Nefertari
7 years agoMember
Hi LisaJHM, I'm newly disgnosed 11th Dec.
I understand the frustration! From the mammogram and being told by GP it was most likely cancer (3 areas in same breast), it took 3 weeks to get into the clinic (public), I was told it would be one week. I was so frustrated which is rare for me that I rang my GP to vent and he called the them. Voila they rang within an hour with an appointment time, so try that it can't hurt.
Once I was "in" though things happened fast and they are all awesome.
I love <3 that saying AllyJay "Hurry up and wait" it says it all really.
On the positive side I now feel that things are happening so fast :p An appointment /scan/ test every day and no free days to be myself.
I thought I had a four day break but I just got a call that the portacath is booked for Christmas Eve and they want to redo a biopsy on the 27th December that was said not to be cancer. I was told only one lymph node near the tumour was affected but because I'm triple negative my oncologist has advised it. I don't even know what all that means, nor do I know my stage cancer as they have mentioned 11 and 111. I take it one day at a time and do the things I love, spend time with the positive people and of course my animals.
I had my first chemo yesterday and it was not as bad as I expected, lovely nurses and environment and I am feeling okay.
Less anxious now I know what that is like. Also met a lovely lady at the Clinic who lives near me and we are meeting up after Christmas for coffee, she is further along in treatment and her insights and texts have been fantastic and uplifting, I hope you have the same experience.
This is a very welcoming place and everyone has been more than supportive.
I understand the frustration! From the mammogram and being told by GP it was most likely cancer (3 areas in same breast), it took 3 weeks to get into the clinic (public), I was told it would be one week. I was so frustrated which is rare for me that I rang my GP to vent and he called the them. Voila they rang within an hour with an appointment time, so try that it can't hurt.
Once I was "in" though things happened fast and they are all awesome.
I love <3 that saying AllyJay "Hurry up and wait" it says it all really.
On the positive side I now feel that things are happening so fast :p An appointment /scan/ test every day and no free days to be myself.
I thought I had a four day break but I just got a call that the portacath is booked for Christmas Eve and they want to redo a biopsy on the 27th December that was said not to be cancer. I was told only one lymph node near the tumour was affected but because I'm triple negative my oncologist has advised it. I don't even know what all that means, nor do I know my stage cancer as they have mentioned 11 and 111. I take it one day at a time and do the things I love, spend time with the positive people and of course my animals.
I had my first chemo yesterday and it was not as bad as I expected, lovely nurses and environment and I am feeling okay.
Less anxious now I know what that is like. Also met a lovely lady at the Clinic who lives near me and we are meeting up after Christmas for coffee, she is further along in treatment and her insights and texts have been fantastic and uplifting, I hope you have the same experience.
This is a very welcoming place and everyone has been more than supportive.