New and just diagnosed with TNBC
This discussion was created from comments split from: Triple Negative.
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I'm sorry you had to join this group.
I was diagnosed with multifocal ductal invasive carcinoma Triple Neg in August, just over 3 months ago. The biopsy found it was also in my nodes, and ct scan and bone scan shown it had no spread anywhere else. I had a single mastectomy and lymph node removal fairly quickly
I am a single Mum with 3 kids who depend on me so chemo for me was a no brainer - I'm prepared to do everything and anything that is offered so I survive this.
I've ve just had my 4th and final AC fortnightly chemo dose yesterday. I am one of the lucky ones, I've had very little side effects - no nausea, just a few issues with my bowels, a bit of reflux and fatigue. Generally I rest for 2 days after chemo (self informed as I have a tendency to over do things) then I'm back at it.
In in two weeks I start my next round of paclitaxel every week for 12 weeks and carboplatin every 3 weeks. Following that I'll have a 3 week break then 5 weeks of radiotherapy....then I'm done.
When I first met my oncologist she said with surgery the cancer was all removed and essentially I was cured of cancer. Chemo buys you 'insurance' to kill any strays that might be floating around and to help protect against it coming back. I found this reassuring, and when my hair fell out and when I had some annoying side effects I took this as signs that thepdrugs were working and doing what they were meant to.
I willingly agreed to all of this as there are lots of new awesome drugs out there for hormone positive cancers, but of course none of those work for Triple Negative, so I felt these were my only treatment options.
One of my best friends was diagnosed with Triple Negative during her pregnancy and had similar treatment to me, and she's fighting fit with no reoccurrence 7 years later. She is my insoriation that I can beat this, and really I haven't really given any thought to the fact that I won't.
I've had the genetic testing an waiting for the results but lots of interesting discussion was had. I learnt that while Triple Negative in the short term is not great, the long term prognosis is excellent and the risk of reoccurrence and other cancers are lower.
Good luck with your decision.
I was diagnosed with multifocal ductal invasive carcinoma Triple Neg in August, just over 3 months ago. The biopsy found it was also in my nodes, and ct scan and bone scan shown it had no spread anywhere else. I had a single mastectomy and lymph node removal fairly quickly
I am a single Mum with 3 kids who depend on me so chemo for me was a no brainer - I'm prepared to do everything and anything that is offered so I survive this.
I've ve just had my 4th and final AC fortnightly chemo dose yesterday. I am one of the lucky ones, I've had very little side effects - no nausea, just a few issues with my bowels, a bit of reflux and fatigue. Generally I rest for 2 days after chemo (self informed as I have a tendency to over do things) then I'm back at it.
In in two weeks I start my next round of paclitaxel every week for 12 weeks and carboplatin every 3 weeks. Following that I'll have a 3 week break then 5 weeks of radiotherapy....then I'm done.
When I first met my oncologist she said with surgery the cancer was all removed and essentially I was cured of cancer. Chemo buys you 'insurance' to kill any strays that might be floating around and to help protect against it coming back. I found this reassuring, and when my hair fell out and when I had some annoying side effects I took this as signs that thepdrugs were working and doing what they were meant to.
I willingly agreed to all of this as there are lots of new awesome drugs out there for hormone positive cancers, but of course none of those work for Triple Negative, so I felt these were my only treatment options.
One of my best friends was diagnosed with Triple Negative during her pregnancy and had similar treatment to me, and she's fighting fit with no reoccurrence 7 years later. She is my insoriation that I can beat this, and really I haven't really given any thought to the fact that I won't.
I've had the genetic testing an waiting for the results but lots of interesting discussion was had. I learnt that while Triple Negative in the short term is not great, the long term prognosis is excellent and the risk of reoccurrence and other cancers are lower.
Good luck with your decision.