Forum Discussion
Lisa1407
4 years agoMember
First "NST" refers to certain cellular features of which "mucinous" is not one. Features they look for to classify "NST" are leomorphic carcinoma, carcinoma with osteoclast-like stromal giant cells, carcinoma with choriocarcinomatous features, and carcinoma with melanotic features (only understandable for pathologists!) If none of these are present then it is "NST". Secondly, you can have more than one type of breast cancer at the same time, but it is very rare. I had two different types and was tested twice in two different laboratories to make sure. However, breast surgeon and oncologist did not believe the results and have treated me all along as having ER/PR +, Her - breast cancer (rather than this and triple negative as well). I could be wrong, but I imagine that treatment for your different types (which are mostly similar) would be the same so I wouldn't be too worried. If you are worried about cancer still being present you could as for whole body PET scan. It isn't unusual for treatment to take a few weeks to start as they like to have your wound healed (depending on what sort of treatment they are thinking about) so I am sure the team will be in touch with you soon. However, don't hesitate to call as the team should be very understanding of the anxiety you are facing when you don't know what is next. There is also the possibility that you may have fallen through the cracks, although this is probably unlikely but worth giving them a call to make sure. In terms of the genetic testing, it can be a bit of a long process depending on what tests they are doing. If they are just testing for BRCA you may get the test results quickly, but if they are testing for a whole lot of other mutations it may take weeks. Although, I was lucky and didn't have to wait too long during each step of the way, I remember how stressful it is just waiting for each step. Hang in there, everything will come in due course and be thankful they are not coming at you at a hundred miles an hour as this usually suggest that they believe the cancer is aggressive. Mucinous cancers are not usually aggressive so hang on to the positives and take the time to digest everything. Good luck Lisa