Hi @laurie123 - sorry to see you here, but you're in the right place for info, support & guidance. Give the Helpline a buzz if you'd like to talk to someone ....
Where abouts are you? You can add your general location (Town/City) in your Profile ..... click on your name, then the little figure next to the 'avatar' to edit your Profile xx. We may have members living nearby who may be able to point you to specific local knowledge/facilities ....
Mine was also Invasive Lobular - and like you, mine was missed by the Breast Screen Bus Mammogram ..... only to be found 4 months later by my GP when she did a boob check at the same time as a pap smear ..... so it MUST have been there but was not picked up.
I've been told that your staging (what level the cancer is) is dependent on whether MRIs are used .... but I hope you did raise the issue with your surgeon yesterday & are comfortable with what they said. Personally, I believe ALL diagnosed with BC (and other cancers) should be given a full body scan (CAT/MRI) to have a 'picture' of our bodies at that point in time, for comparison, further down the treatment path ... as you'll be monitored for at least the next 5 years.
I am guessing your surgery went ahead today & hope that you are feeling relieved & happy now that it is 'out' .... I was scared SILLY before my own surgery - and the relief afterwards was just incredible!!
When you have a minute, check out this post - it has a lot of info on 'other areas' on the forum that may interest you - where you can actually have a laugh (we all need a laugh!) show off your fur kids, your garden or art & craft ...... as well as 'tick sheets' to fill in before your actual appointments with your medical team, so you have something you can give them & don't forget to mention bits (it is easy to forget stuff when face to face with the team) ...
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latestAnother post, Podcasts re
Dr Charlotte Tottman's experience when she was diagnosed with breast cancer (she is a psycho oncologist - specialising in treating BC patients) .... and as with other health professionals, she was amazed at how it affected her, personally & professionally!!https://onlinenetwork.bcna.org.au/discussion/23866/podcast-series-upfront-about-breast-cancer-what-you-don-t-know-until-you-do-with-dr-charlotte-to/p1Take care, all the best for your pathology results - make sure you can take someone with you to your early appointments & consider recording them on your phone, for later reference, as it is SO easy to forget what was said at the time! xx
