Forum Discussion
Cindi
3 years agoMember
Lobular breast cancer just diagnosed
Hello everyone, I'm new to this , I've only found out about my diagnosis one week ago and been going through a lot of testing over the week. I'm waiting on results of MRI on breasts, I had yesterday b...
Julez1958
3 years agoMember
Hi @Cindi
I had lobular cancer - only about 10 to 15 percent of breast cancers are lobular - most are ductal.
It is often called the “ sneaky” cancer as it often does not show up on a mammogram.
Also it typically does not present as a neat round lump but as more of a spider web.
I found a lump only 12 months after my last mammogram and it was so extensive I needed a mastectomy.
I ultimately decided on a double mastectomy and DIEP flap reconstruction.
Lobular is more likely to be hormone positive which gives extra treatment options.
Everyone is slightly different in their circumstances and yet everyone on here “ gets it” in a way people who have never received a breast cancer diagnosis will.
You will find this online community very supportive and informative .
Take care.🌺
I had lobular cancer - only about 10 to 15 percent of breast cancers are lobular - most are ductal.
It is often called the “ sneaky” cancer as it often does not show up on a mammogram.
Also it typically does not present as a neat round lump but as more of a spider web.
I found a lump only 12 months after my last mammogram and it was so extensive I needed a mastectomy.
I ultimately decided on a double mastectomy and DIEP flap reconstruction.
Lobular is more likely to be hormone positive which gives extra treatment options.
Everyone is slightly different in their circumstances and yet everyone on here “ gets it” in a way people who have never received a breast cancer diagnosis will.
You will find this online community very supportive and informative .
Take care.🌺