ILC & IDC found in left breast
Hi, Yesterday, I had my first specialist appointment to receive the results of my biopsy. The result showed that I had both ILC and IDC in the left breast. The iDC is 2.6 but the ILC was running in...
Forum Discussion
Good evening all,
As an update, the second specialist disagreed with the initial specialist/surgeons diagnosis. The PET scan and MRI confirmed that the BC is 2.7cm and not 6cm or inflammatory breast cancer or ILC. It is IDC only...
Also, it showed it was localised in the breast however, the first LN on the left side appeared to be larger than others. It wasn't glowing on the PET scan so I remain hopeful yet.. Im thinking to be prepared for more uncertainty.
My surgery is booked for Thursday, and I have opted to go private. The specialist / surgeon was vague about my prognosis (and I get this is common practice). It was a case of we wont know until we send the tissue to pathology to know if we have got the margins and if there are precancers in the LN. I will have 3 - 4 LN removed and the left will have a lumpectomy with reconstruction, the right will be reduced for symmetry/size.
I feel no different physically but emotionally, Im all over the place. Not knowing if this is going to spread in the future is doing my head in, then the idea that chemo / rad may cause nerve damage. You see my mum died of motor neurone disease when she was 38 years, and there are far too many unknowns about the causes of it.
A big part of me is saying to do surgery and hormone treatment and nothing more than that. The specialist said that due to my age of 49 years that it is likely that I will need chemo and rads. I dont want chemo and I feel that when I get through this surgery - then its more pain and suffering to do a treatment plan from hell.
One more thing, they found a <4cm nodule on my thyroid that needs investigation. It wasnt glowing on the PET scan but they want to do a FNA. I said not doing it before surgery, but I will have an ultrasound tomorrow...
Im fit, have healthy BMI, the first in the family with BC, I dont drink, smoke or meet any of the obvious risk factors for BC - so these past two weeks (learning that I have a chronic disease or two) feels ******!
Any way, thanks for listening.
As an update, the second specialist disagreed with the initial specialist/surgeons diagnosis. The PET scan and MRI confirmed that the BC is 2.7cm and not 6cm or inflammatory breast cancer or ILC. It is IDC only...
Also, it showed it was localised in the breast however, the first LN on the left side appeared to be larger than others. It wasn't glowing on the PET scan so I remain hopeful yet.. Im thinking to be prepared for more uncertainty.
My surgery is booked for Thursday, and I have opted to go private. The specialist / surgeon was vague about my prognosis (and I get this is common practice). It was a case of we wont know until we send the tissue to pathology to know if we have got the margins and if there are precancers in the LN. I will have 3 - 4 LN removed and the left will have a lumpectomy with reconstruction, the right will be reduced for symmetry/size.
I feel no different physically but emotionally, Im all over the place. Not knowing if this is going to spread in the future is doing my head in, then the idea that chemo / rad may cause nerve damage. You see my mum died of motor neurone disease when she was 38 years, and there are far too many unknowns about the causes of it.
A big part of me is saying to do surgery and hormone treatment and nothing more than that. The specialist said that due to my age of 49 years that it is likely that I will need chemo and rads. I dont want chemo and I feel that when I get through this surgery - then its more pain and suffering to do a treatment plan from hell.
One more thing, they found a <4cm nodule on my thyroid that needs investigation. It wasnt glowing on the PET scan but they want to do a FNA. I said not doing it before surgery, but I will have an ultrasound tomorrow...
Im fit, have healthy BMI, the first in the family with BC, I dont drink, smoke or meet any of the obvious risk factors for BC - so these past two weeks (learning that I have a chronic disease or two) feels ******!
Any way, thanks for listening.