Hello, and another one recently diagnosed and starting on the journey

Hey @Volunty From the sound of it you are doing an excellent job of keeping yourself sane and organized. BC is a major project, my advice is to keep really good records of the who, what, when wheres. It may feel at the moment that every detail will be seared into your memory for all time, but as time passes, you forget things.

I've just done the whole business again after a recurrence and I managed to forget my surgeons' name the other day. I've known him for over a decade and we've had some rocky roads and robust discussions along the way. Then, at a  crucial moment, I forget his name.

This is why I take my trusty folder with me every time I have an appointment. It's bulging with cards from everyone I see, all (and I mean all) my test results, a diary, and my note book. If anyone ever gives you the irrits, rip that notebook out, give them the hairy eyeball and ask--very politely--'would you please spell you name.' Even if it's Smith. Particularly if it's Smith.  It's a great leveler and I've rarely had to take things any further. There is something about an old battle-axe with her tongue hanging out, dipping her thumbnail in tar and recording you name which makes even the most self important medico do a double take then reassess if they want to continue to be rude. Good luck,  Marg x