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JSN's avatar
JSN
Member
8 years ago

Halfway through treatment

Hi all

I finally have the courage to contribute here after skirting around the edges for the last few weeks. 

In late July I felt a thickened like a small swollen area in my right breast. I knew I had to get it checked.  Off to GP who felt nothing but sent me for a mammogram & ultrasound.  Monday: Mammogram was clear, ultrasound sound showed a 'cyst' that looked a bit unusual.  Had fine needle aspirate with ultrasound.  Friday I go to the GP and receive the news that its cancer. I am 52 years old.

I know that everyone here on this forum will relate to the feelings, emotions and stupefied numbness that followed.  By the following Wednesday I was in surgery (lumpectomy) and planning chemo, considering genetic testing, career and study on hold.  I think in the first weeks I just thought 'oh well I guess I won't be here next week'. I really had ridden myself off.

Nothing prepared me for the shock, desperation and sadness that followed in rearranging everything in my life. I was working full time, long days, very busy and loving it, studying, managing-husband, home and two teenagers at university.  Everything came to a complete and utter stop.  I don't think I slept for a week.  Looking back now I can barely remember the details of the days between surgery (recovery) and starting chemotherapy.

Having four rounds of AC (last one coming up) followed by weekly pax for 12 weeks, then radiation.  So its a chemo Christmas. 

I have never felt so lonely or so confronted.  Some friends have helped and some have disappeared.  I have seen some family initially but that has sort of waned off.  Yes, I also find it extremely hard to ask for help. 

I am/was a very active person mentally and physically so treatment weeks and the following fatigue has been arduous at times.  The dexamethosone makes me feel like I am going mad (tears & sadness).  Going from high activity and interaction with people to very little has been very hard.  Everyone I know works full time! I am furiously crocheting (coming into summer!), making Christmas cards, doing crosswords, trying to read, cooking a little bit on good weeks/days and trying to avoid googling breast cancer because I end up down rabbit holes of despair where the stories all end badly.

I have been out very little so feeling very cooped up.  When I have gone out I feel so lacking in confidence and so very hairless-I find the stares, looks and avoidance stares rather intrusive.  Yes I am having active treatment for cancer but I am not contagious.

So I am here, sharing my story which is so similar to everyone here, hoping to connect, make some friends, air my thoughts and feel not so alone.

 SJ Brisbane, QLD


13 Replies

  • Hi there. It's a hell of a shock isn't it? All I can say is, five years on, you look back and wonder where the time went. I had a mastectomy, axillary clearance, chemo, herceptin and I am looking at the last 6 months of hormonal therapy (an AI). I was one of the lucky ones who did not suffer fatigue or nausea, so I worked through treatment. I do have a few long term side effects, which somewhat dented my confidence, but all manageable. From this end of the process, there are some things I know helped me, may possibly assist you.

    I kept a journal, just on my computer. I found it helped to keep track, whinge a bit privately, remind myself of things. I called it the Bald before Christmas chronicles! I still write in it occasionally. It's just for me so far

    Went to a counsellor when I got the third long term side effect. I wasn't depressed, just somewhat confused about who I was any more. Best thing I could have done. Sometimes you need someone else, not a friend or family, to tell you the obvious! Nothing dramatic, just small practices that got me back on track quite quickly.

    Got a wig. I was NEVER going to wear a wig. But I did, nearly all the time. An attractive hairdo is a boost anytime, when you are feeling down, over it, and in my case, mono-boobed, it's even more valuable. It was synthetic, easy to manage and not very expensive. And many people I worked with didn't know I had cancer. It was never a secret among immediate staff, but you don't need a big sign for every Tom, Dick and Harry.

    This will pass. Things will shift and happen on the way because that's life. and you are still very much part of it. My best wishes. 


  • Hi SamJgS  Thankyou for having courage to come wade in with ys in this pool of unknowns , waiting games and some wonderful support in the process  Grab your floaties or inflarable of any kind and know in the rapuds you wull be heard amidst the defining noises of diagnosis treatment and mire treatment and hopefully breathing space akong the way There is always someone to throw out a life line through info and care  oiu are not alone.  I am on gold coast and there are support groups around  Have you got the breast care kit from bcna?  We are here if you want to chat  Take care and all the best for your treatment.
  • Hey SJ. It really is the pits. I've been off work for just over a year having treatment for a recurrence. Prior to that I'd been in a busy job for 15 years--i was made redundant during a restructure a month before my (re) diagnosis.

    I've managed to do a double advanced diploma while I've been sick which, though exhausting, helped keep me sane. Sort of. At one point I resorted to knitting beanies. I can't knit for shit and the majority would only have fitted Jabba the Hutt or mini me. A complete waste of time as were dozens of crosswords and hundreds of novels. I've avoided the perils of daytime tv, thank god, but that's probably because I hang out on line reading newspapers.

    Keep plodding. Which is incredibly frustrating when you have always been more a hare than a tortoise. Best of luck with the rest of the chemo. Marg x