Hi @mk24 I was diagnosed with ILC. I became aware of it because I felt a lump, as you probably know a lump is unusual and a “lucky” warning in cases of ILC.
I was er+ and pr+ but HER2+
I am conscious that you’re not HER2+ and that my chemo targeted treatment followed the usual regime for people with HER2+ attributes.
So if this makes my experience irrelevant apologies in advance for the distraction!
But I did want to share that my breast cancer has responded to neo adjuvant chemo.
The pathology taken after 6 doses and 4 months of treatment, at the lumpectomy surgery, showed the tumour shrank from 3.8 cm to <1cm.
There were residual scattered small foci of “classical” ILC present, arranged in cords and clusters. No lymph node involvement. No “residual pleomorphic ILC” was identified.
My ki67 score was considered low - 4%
On this basis my breast surgeon and oncologist did not consider further surgery necessary and instead I went onto have radiation therapy and another 7 months (11 doses) of a HER2+ chemo and immunotherapy, targeted infusions.
I was also started on the aromatase inhibitors (Letrozole) after radiation therapy and will be on these for at least 5 years.
Sending you lots of positive energy for the steps ahead 🌸🌻
