Forum Discussion
Could really use some inspiration from a positive experience
Hi amazing people - I'm new to this site and forum and so appreciative of all the information on here and the generosity of so many incredible people who have shared their stories. I'm right at th...
Hi Eastmum
So sorry that you are on this mad rollercoaster. Last Feb I was diagnosed with ILC in both breasts - I don't think that there are too many of us around. Mine too was difficult to diagnose- negative mammograms and ultrasounds despite physical changes. Eventually a biopsy was ordered and confirmed malignancy - ER/PR +ve and HER2 +ve. The tumour in my left breast was 10.8cm- I had 9 positive nodes. Smaller on the right with 2 positive nodes. All my bone scams and CT scans were normal so no spread- Yeah!!!! I had a bilateral mastectomy and bilateral axillary clearance followed by 6 months of chemo and 5 weeks of radiation. I am on herceptin until June. The final words that my Oncologist said to me on our first meeting were- "leave this office knowing that this is treatable and curable".
I can't say that the chemo was easy nor the radium but you do get through it- you don't have a choice. Try to not let your thoughts go crazy - easier said than done - I know. This is the hardest time- the uncertainty, the waiting. Once you know exactly what you are dealing with and have a treatment plan it gets easier. Remember a thought is just a thought- so if you are fixating on something - ask yourself- is this real or is it just a thought?
11 months on I am preparing to return to work,starting to resemble my old self. I am even considering reconstruction surgery. It is shit at the moment but you have a lot of living ahead of you. Be kind to yourself. Deb xxx
So sorry that you are on this mad rollercoaster. Last Feb I was diagnosed with ILC in both breasts - I don't think that there are too many of us around. Mine too was difficult to diagnose- negative mammograms and ultrasounds despite physical changes. Eventually a biopsy was ordered and confirmed malignancy - ER/PR +ve and HER2 +ve. The tumour in my left breast was 10.8cm- I had 9 positive nodes. Smaller on the right with 2 positive nodes. All my bone scams and CT scans were normal so no spread- Yeah!!!! I had a bilateral mastectomy and bilateral axillary clearance followed by 6 months of chemo and 5 weeks of radiation. I am on herceptin until June. The final words that my Oncologist said to me on our first meeting were- "leave this office knowing that this is treatable and curable".
I can't say that the chemo was easy nor the radium but you do get through it- you don't have a choice. Try to not let your thoughts go crazy - easier said than done - I know. This is the hardest time- the uncertainty, the waiting. Once you know exactly what you are dealing with and have a treatment plan it gets easier. Remember a thought is just a thought- so if you are fixating on something - ask yourself- is this real or is it just a thought?
11 months on I am preparing to return to work,starting to resemble my old self. I am even considering reconstruction surgery. It is shit at the moment but you have a lot of living ahead of you. Be kind to yourself. Deb xxx