Forum Discussion
Could really use some inspiration from a positive experience
Hi amazing people - I'm new to this site and forum and so appreciative of all the information on here and the generosity of so many incredible people who have shared their stories. I'm right at th...
Hi @Eastmum, and first off, big hugs to you it's such a scary and difficult time but as someone who was also diagnosed with invasive lobular cancer (I had 2 of those buggers that successfully hid away until one got so big it pulled in my nipple) back in 2012. Both of the lobular tumours were strongly ER/PR + and I had a small but aggressive invasive ductal tumour that was HER2+.
I was probably where you are now with the worry of things having spread and was absolutely petrified before my first CT scan as although I knew I had inflammation from osteo-arthritis in my knees / back etc this suddenly became, in my mind, something much worse. Your friend is so right and very wise, not to write the chapter before it's happened, although I know that jumping to worse stage scenarios is a particular talent of mine!
To cut a very long story short, after a year or more of intensive treatment and a further year doing reconstruction and now on Tamoxifen for a few more years yet, I'm still here almost 6 years on from diagnosis and so far (fingers crossed) all looks good. I still panic a bit when new pains / niggles happen but also know I've done everything I can to do to try and not go down this path again and I guess that's all any of us can do.
Best wishes, Jane xx
I was probably where you are now with the worry of things having spread and was absolutely petrified before my first CT scan as although I knew I had inflammation from osteo-arthritis in my knees / back etc this suddenly became, in my mind, something much worse. Your friend is so right and very wise, not to write the chapter before it's happened, although I know that jumping to worse stage scenarios is a particular talent of mine!
To cut a very long story short, after a year or more of intensive treatment and a further year doing reconstruction and now on Tamoxifen for a few more years yet, I'm still here almost 6 years on from diagnosis and so far (fingers crossed) all looks good. I still panic a bit when new pains / niggles happen but also know I've done everything I can to do to try and not go down this path again and I guess that's all any of us can do.
Best wishes, Jane xx