Hi @Eastmum, and first off, big hugs to you it's such a scary and difficult time but as someone who was also diagnosed with invasive lobular cancer (I had 2 of those buggers that successfully hid away until one got so big it pulled in my nipple) back in 2012. Both of the lobular tumours were strongly ER/PR + and I had a small but aggressive invasive ductal tumour that was HER2+.
I was probably where you are now with the worry of things having spread and was absolutely petrified before my first CT scan as although I knew I had inflammation from osteo-arthritis in my knees / back etc this suddenly became, in my mind, something much worse. Your friend is so right and very wise, not to write the chapter before it's happened, although I know that jumping to worse stage scenarios is a particular talent of mine!
To cut a very long story short, after a year or more of intensive treatment and a further year doing reconstruction and now on Tamoxifen for a few more years yet, I'm still here almost 6 years on from diagnosis and so far (fingers crossed) all looks good. I still panic a bit when new pains / niggles happen but also know I've done everything I can to do to try and not go down this path again and I guess that's all any of us can do.
Best wishes, Jane xx
