Hi @Eastmum. I also have ILC and was diagnosed 6 weeks ago after a screening mammogram. I was incredibly lucky (?!) that the mammographer picked up that something didn't look right. My initial diagnosis was 2.5cm tumour with no likely node involvement. I had the CT scans which are, I agree, scary, and for me, came back clear. (I'm surprised that they could get a clear scan as I was shaking so badly) However, with surgery my tumour turned out to be 4.5cm without clear margins and with 3/5 lymph nodes involved. I went to see my oncologist for the first time the other day and when he started going through my CT scans, I immediately thought the worst and that he was going to say that they'd missed something, but yes, arthritis does show up on the scans so those achy knees and hips and back are just that. Interestingly, he said that he could barely pick the cancer on the scan. ILC is a bitch on wheels. The only thing that has got me through all of this so far is the knowledge that whatever it is, it is and not knowing is going to change that. Only knowing what's there can change it. Try not to Dr Google, take support from your family and friends and the lovely people on this network. If you're really not coping, try to access counselling from your local Cancer Council. I only got by in the first few weeks with Tamazepan and Serepax - at least I managed to get a couple of hours sleep without the mind spinning. Gaye
