Hi @TassieGrandma
Sorry to see you join us here at BCNA .... but most will agree that joining BCNA is the best thing we’ve done!! Have you seen the ‘care kit’ that BCNA will send you .. with a diary and all sorts of terrific info that will help you along the way. It is invaluable.
https://www.bcna.org.au/resources/my-journey-kit/There is HEAPS of top info here, and lots of sympathetic ears to help you with all your questions and also help you thru the next few months.
yep, there is no ‘guide’ for how to react to the diagnosis. My husband was diagnosed with stomach cancer in 2010 ... so I was ‘sort of’ used to what was going to happen .... so a bit more prepared, I guess.
My main suggestion would be to have a family member or good friend attend any meetings that you attend (surgical and beyond), as a 2nd set of ears and also emotional and physical support for you. You sound like you are ‘on top’ of things right now ... but as others have said, sometimes, the smallest thing can turn everything upside down .... hopefully it won’t ... but maybe just be prepared for it.
Sleep (or lack of) really seems to be a major factor ... I take the occasional Temase, but I mainly just try to remain as active as I can, to make me tired enough to sleep well.
Keep doing what you love doing. Tell those close to you about your diagnosis, as they will support you most. You Don’t have to tell those who don’t matter. My uke group buddies were part of my saving grace ..... keeping up with it kept my mind off things!
If if there is anything that we can help you with, just ask. Someone will have an answer!
Take care, and we are thinking of you.