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question please?","id":"message:44455","revisionNum":1,"repliesCount":22,"author":{"__ref":"User:user:1100"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"conversation":{"__ref":"Conversation:conversation:44455"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:44455"},"body@stripHtml({\"truncateLength\":200})":"Hi all, As some of you may have seen from my past post regarding the return of the cancer, or should I correctly say, it was never all taken at that time even though they said they had got it all wi...","body@stringLength":"1741","rawBody":"Hi all, As some of you may have seen from my past post regarding the return of the cancer, or should I correctly say, it was never all taken at that time even though they said they had got it all with clear margins, still so angry .
I'm now staring down the barrel of chemo afterwards, as part of my treatment from this round of surgeries, I wasn't required to under go chemo 1st time, so I dodged that, this time its not looking like I will have that same luxury, My questions are for all of you who have had to face this, how long dose it take for you to loose your hair, I'm just trying to do the best to mentally prepare myself, I fully understand each one of us are completely different, and each chemo session plan will be different form the next, its more of a general idea, like dose it start to come away after your 1st session, or do you get through all your sessions and then you see the hair starting to come away, I do have a great breast care nurse, who is lovely, we are just back at the early stages now biopsy's done, MRI done, PET CT scan booked in for this week, they have now seen another lump in the breast that could need another biopsy prior to theater, the list keeps going on this. But I have been advised by both the surgeon and y breast care nurse, chemo is a high possibility Is there any advice you can share on how to prepare both physically and mentally for this treatment. I have the worlds worse veins, so I've ben told about a pick line, that sounds fun, not!
anything you wish to share would be very helpful, so I can try my best to mentally prepare for this stage Thank you all :)
","kudosSumWeight":0,"postTime":"2023-08-06T23:33:43.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:chemotherapy","text":"chemotherapy","time":"2025-03-25T05:01:41.190-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDI","node":{"__typename":"Tag","id":"tag:chemotherapy-side-effects","text":"chemotherapy-side-effects","time":"2025-03-25T05:02:16.577-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDM","node":{"__typename":"Tag","id":"tag:lumpectomy","text":"lumpectomy","time":"2025-02-12T19:23:18.414-08:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDQ","node":{"__typename":"Tag","id":"tag:working-through-treatment","text":"working-through-treatment","time":"2025-03-25T05:02:21.661-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:44455_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":772},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"customFields":[],"body":"Hi all, As some of you may have seen from my past post regarding the return of the cancer, or should I correctly say, it was never all taken at that time even though they said they had got it all with clear margins, still so angry .
I'm now staring down the barrel of chemo afterwards, as part of my treatment from this round of surgeries, I wasn't required to under go chemo 1st time, so I dodged that, this time its not looking like I will have that same luxury, My questions are for all of you who have had to face this, how long dose it take for you to loose your hair, I'm just trying to do the best to mentally prepare myself, I fully understand each one of us are completely different, and each chemo session plan will be different form the next, its more of a general idea, like dose it start to come away after your 1st session, or do you get through all your sessions and then you see the hair starting to come away, I do have a great breast care nurse, who is lovely, we are just back at the early stages now biopsy's done, MRI done, PET CT scan booked in for this week, they have now seen another lump in the breast that could need another biopsy prior to theater, the list keeps going on this. But I have been advised by both the surgeon and y breast care nurse, chemo is a high possibility Is there any advice you can share on how to prepare both physically and mentally for this treatment. I have the worlds worse veins, so I've ben told about a pick line, that sounds fun, not!
anything you wish to share would be very helpful, so I can try my best to mentally prepare for this stage Thank you all :)
"},"Conversation:conversation:44455":{"__typename":"Conversation","id":"conversation:44455","solved":false,"topic":{"__ref":"ForumTopicMessage:message:44455"},"lastPostingActivityTime":"2023-09-07T14:09:15.000-07:00","lastPostTime":"2023-09-07T14:09:15.000-07:00","unreadReplyCount":22,"isSubscribed":false},"ModerationData:moderation_data:44455":{"__typename":"ModerationData","id":"moderation_data:44455","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:44455_1":{"__typename":"Revision","id":"revision:44455_1","lastEditTime":"2023-08-06T23:33:43.000-07:00"},"ForumReplyMessage:message:44456":{"__typename":"ForumReplyMessage","id":"message:44456","conversation":{"__ref":"Conversation:conversation:44455"},"author":{"__ref":"User:user:16650"},"revisionNum":1,"uid":44456,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"subject":"Re: chemo question please?","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:44456"},"parent":{"__ref":"ForumTopicMessage:message:44455"},"body":"Bad luck but take heart, some of us found chemo not as bad as feared. But yes, the hair did go. Most people report about a fortnight after the first infusion - mine went bang on schedule. Just a lot of hairs, no lumps or hanks, but I had my hairdresser at the ready and she cut my hair very short that morning (number 3 clippers) which saved a lot of mess. Some people shave their head but I felt that was a bit sudden! The rest followed inexorably - I wore a cotton night cap (your scalp may feel quite sensitive a week or so before hair starts to fall) and could just shake it all out in the bathroom sink each morning!
I only had one useable arm for needles ( lymphoedema after surgery, a whole other story) and I managed through 6 months of chemo without a line or port, but many find a vein saver preferable.
You might like to think about how you treat being bald - the Sinead approach (my skull just wasn’t such a good shape!), scarves and hats, or a wig. Many of us end up with a combination of all. I worked through chemo (as I said, not as bad as I feared) and a synthetic wig was great. No-one knew unless I told them. Everyone has their own preferences. Very best wishes. ","body@stringLength":"1232","rawBody":"Bad luck but take heart, some of us found chemo not as bad as feared. But yes, the hair did go. Most people report about a fortnight after the first infusion - mine went bang on schedule. Just a lot of hairs, no lumps or hanks, but I had my hairdresser at the ready and she cut my hair very short that morning (number 3 clippers) which saved a lot of mess. Some people shave their head but I felt that was a bit sudden! The rest followed inexorably - I wore a cotton night cap (your scalp may feel quite sensitive a week or so before hair starts to fall) and could just shake it all out in the bathroom sink each morning!
I only had one useable arm for needles ( lymphoedema after surgery, a whole other story) and I managed through 6 months of chemo without a line or port, but many find a vein saver preferable.
You might like to think about how you treat being bald - the Sinead approach (my skull just wasn’t such a good shape!), scarves and hats, or a wig. Many of us end up with a combination of all. I worked through chemo (as I said, not as bad as I feared) and a synthetic wig was great. No-one knew unless I told them. Everyone has their own preferences. Very best wishes. 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