Hi @dada I had my first round of TC chemo yesterday using the cold cap and as @kmakm said above it was the first 12 minutes that was the most uncomfortable. It wasn’t too painful for me more that it just felt super weird as your head got colder and colder. I found that the rest of my body went really cold too but that was easily alleviated by lots of lovely heat packs and about 5 blankets that the nurses kept piling onto me! They gave me two Panadol and a Valium type tablet that dissolved under my tongue before they started to try out which caps would fit me which helps take the edge off the cold cap at the start. It did take quite a few goes to find the right fit and be vocal if you think it’s not sitting quite right. I was able to eat a little bit during my chemo and drink a few hot teas along with water. It does take longer in the chair when using the cold caps as I was there for around 5.5 hours but I did nap for a bit which made it go faster plus I watched some awesomely entertaining shows like Game of Thrones on my iPad 😊 my sister was there with me too which was a big comfort and she helped wet my hair and put conditioner on my head too which is a step before they put the cold cap on.
I know it was only my first time but I now feel heaps better about using the cold caps going into my next session in three weeks time as I know what to expect. The fear of the unknown was way worse than the treatment itself for me which is only natural. Other than being mega tired yesterday and a bit wobbly on my feet from the anti nausea meds, I was ok. This morning too, I am still just tired and only a little bit queasy so not too bad... so far!
Good luck with your first chemo session next week and feel free to pm me as it would be nice to chat with someone who is going through chemo at the same time x